Category Archives: chronic illness

Prompt for the Day: “Natural”

The people working at the Daily Post division of Word Press who must be word smiths by nature chose the word “Natural” for our daily artistic works to be a representative of today.

Prefer Foods We Grow Ourselves

At least then I know for sure no added chemicals have touched their surfaces!  No bug sprays or strange fertilizers are used in the production of my vegetables.  This year am only growing tomatoes.  Next year, if the endeavour is successful, will be growing them and more plant varieties.

Deciding what to plant will be something me and my husband will have to decide on over the winter.  Cucumbers, peppers, herbs, and many other things could be grown here at home!

Foods that occur in nature naturally like dandelions aren’t things I personally like to eat, but wild onions from a remote location  taste really good!  Just have to be careful they were not subjected to spraying of chemicals in the general vicinity.  Washing them off with clean water may not be enough to get rid of the contaminates, unfortunately.

Wild straw berries are a take your chances if you come across them.  Natural nuts are normally safe to eat.  Wild rhubarb used to grow around the fields near where I grew up as a child.  Not a fan of that particular plant myself.  Preferred coming across wild blue berry plants!  That was a rarity, but it was good.

Please Help Fight Evil Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

 

Prompt for the Day: “Struggle”

The wimps from the Daily Post group of Word Press would like for us to focus our artistic talents on the concept of “Struggle” for today’s creations.

My Daily Struggles

Have to fight with my failing health which leaves me exhausted after a full night’s sleep.  The increasing anxiety over my illness each second of the day leaves me quivering in fear!  The antidepressants that were prescribed to me do nothing to calm my nerves like the doctor told me they would.  Have given them plenty of time for my system to adjust to the drugs, but like everything else they have tried on me, it DOES nothing to help!

Each day I feed the cat we adopted from the humane society twice a day.  The animal still has fun clawing and biting me!  Think he is a feline representative of the devil himself.  If you start petting him, keep an eye out for a mood change in him and be prepared to be attacked!  For some unknown reason he does not attack my husband.

At least I no longer have to struggle with my father the masochist!  Why my mother remains living with him is beyond me.  She works full time making more money than he could ever dream of doing.  All three of her children are fully grown now.  There are no excuses left to subject herself to his humiliations!

Please Help Fight Horrendous Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: “Rebuild”

The people apparently from America’s reconstruction era of our country’s history want us to concentrate all of our artistic talents on the word “Rebuild” for today.

Have No Desire to Reconstruct My Life

The life I had while we lived in Colorado is long in the past.  Miss the people we knew there, but they have also moved on and away from the location.  People in that state now have changed both in religions and number of immigrants to our country (some legal, but too many not legally living here in America).

Went through too many trials to get to the point my husband and I are now in.  Here and Now, we are living in a handicap accessible home (have to redo the upstairs bathroom, but that will happen after the next year’s tax returns come in).  Just have to be patient and wait for it to come!

Have started growing fresh tomatoes in garden boxes.  Have not tried growing anything since the straw berries in CO.  They were unsuccessful, but that may have been from the inhospitable growing environment.  Even the grass (you know the stuff that grows on the ground naturally in most paces) we tried to nurture there did not grow as planed!

Please Help Fight Terrible Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: “Understanding”

The highly intelligent people at the Daily Post division of Word Press want us to concentrate our artistic talents on the word “Understanding“.

But I Don’t

It is rare that my mind understands anything these days, unfortunately.  Just generally make it up as I go along today!  Makes for an interesting life, at least.  Between hallucinations and the animal we adopted a few years ago (was supposed to be a cat, but in reality is a chicken) who is the feline version of Stephen King’s Cujo.

The animal for some ungodly reason has developed a taste for my blood!  I refer to him as a demon devil.  Think Satan must be his best friend or something.  I feed the cat twice a day, every single day!  He still bites me, when I relax my guard around him.  Petting him can occasionally turn him vicious.  I might get a flash of his evil eyes as a warning, but sometimes there is no precursor to the oncoming attack.

I have no clue with this animal.  Usually, get along better with the animal kingdom than fellow humans.  We have adopted other animals before with no problems, just this last one seems possessed!  My intolerance seems to be the main problem with this creature.   He enjoys playing with toys that make noise and small bouncy balls.  After we go to bed at night you can hear him bouncing his bouncy balls all around the house.  He just refuses to play while we are in the room with him, for some reason.

Please Help Fight Evil Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: “Simplicity”

The simple people at the Daily Press group of Word Press chose the word “Simplicity” to focus our daily works of art on.

Do these people sew?

Back when I was still able to sew things myself, started using the patterns by the company of Simplicity.  Made a full dress and pants suite in grade school.  Later on in life after I was married, used their patterns to make curtains for our house.  The patterns by this company was a go-to pattern source for both me and my mother.  Fortunately, she still has full coordination of her hands so she still uses them.  I miss being able to both sew and do needle point since I have lost my coordination due to multiple sclerosis.

A Simpler Life

Wish my life was not so complex as it has become today.  Even making a simple doctor’s appointment involves having to arrange transportation both to and from the appointment.  Haven’t been able to drive for years.  Voluntarily quit driving because of me intermittent  vision problems.

Sometimes I see double, some times I can’t see out of one of my eyes (changes which one is the problem by the day), but fortunately have never completely lost my ability to see!  Have no idea how I would handle being completely blind if it ever comes to that.  I like to read too much!

There is the other problem of I may be seriously losing my mind!  I hallucinate on a regular basis.  Tell my husband if I see something that I don’t think is actually there in real life.  Most of the time he reassures me that it isn’t there.

Please Help Fight Terrible Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: ” Mountain”

The diminutive people from the Daily Post division of Word Press would like for us to undertake an enormous project of using the word “Mountain” to create our assorted works of art.

Mountains in My Life

Literal,

Would have to be the ones found in the Rocky Mountain national park located up in Colorado.  Miss driving up there while we lived in the state for over seven glorious years.  Went skiing down the mountains there for the first time on skis in my life.  Had a blast!

Figurative,

Mountains are the ones caused by my health problems.  Was diagnosed with multiple sclerosis back in 1996.  Tried running from that fact for years through many different states of the U.S., but it always followed me.  The different medicines they have put me on to try to hide the problem have interrupted my life with devastating side effects.

One of the nastiest is the constant depression that has laterally made me try to commit suicide at least once!   Took me and my husband years to get over that issue that threatened our marriage together.  Took 4 moves to distance us from that nightmare.  We are both tired of running away from it!

No plans to ever relocate from our current handicap accessible home.  Basically, will take a natural disaster to remove me from this location!  Have decent neighbors here, readily accessible transportation, and decent internet connection available.  What more could we want?

Please Help Fight Evil Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: “Transformation”

The people who grew up watching the “Transformers” cartoons on television chose the word “Transformation” to morph our different forms of art into a daily creation.

Transformations during my Life

Turning from full time dairy farm employee to full time student at the age of seventeen when I moved to a different state of the U.S. to attend college.  Was not used to having so much free time on my hands.  The smart person would have used the free time to concentrate on their studies, but…

Became an under-age alcoholic instead!  Was unaware that my grandfather was a former alcoholic, that is why he shied away from even the discussion of drinking.  Took me several years of continuous drinking before I got a glimpse of what I had become.  On a three day weekend when all my room-mates where out of town, threw away all the alcohol I had on hand and preceded to sober up alone.  Was a long weekend experiencing D.T.’s all by myself.  Became close personal friends with the toilet.  Now knew what the referred to as “worshipping the porcelain Gods”.  Lost track of how many times I had the dry heaves after empting the contents of my stomach.

Moved out of the dorms to various apartments.  The last one while I was in college was an apartment I shared with a co-worker.  That was fine until he decided to move out, leaving me all alone to pay for an apartment that I was used to only paying half of the rent for.  Had to find a new room mate!  Had been dating a guy for a few months, he was in the same apartment complex as me.  We decided to both live in my apartment because it was the bigger of the two.

Since I was used to sharing the place already, was not that much of a change for me, for him however he had to get over the hang up of not being able to defecate in the apartment while I was still there.  Took some convincing but I explained to him that I was used to shoveling cow manure so would be extremely surprised if he could offend my nose!  Eventually, he adapted to the situation.  A few months later…

I asked him to marry me!  Talk about a transformation, he flat out turned me down.  He told me to wait until he asked me (you confused yet?).  He hadn’t asked my father for permission.  Let him know that if he asked my father, I wouldn’t marry him.  If he wanted permission, he could ask my grandpa (the former alcoholic).  So when we travelled back to the state from which I had come, after lunch with my grandparents he went and spoke to grandpa alone.  He returned with a big grin on his face.  All he had to promise was that we not marry before I finished school and he had to take care of me for the rest of his life!

The day after graduation, we got married!  Now I transformed into being a devoted wife.  My employer gave me the week off.  Our honey moon was only an overnight affair, but I had to take care of getting all my legal paperwork that a name change requires taken care of.

A year later, I started getting sick (was not pregnant!).  My body just couldn’t decide if the room was spinning around or not (hadn’t touched a questionable drink or taken drugs) so he took me to the emergency room to try to get my body to stop vomiting.  They gave me a blood test to confirm I was not with child or had not had anything slipped into me.  The medicine they ended up prescribing turned out to just be an expensive form of Dramamine.  With the medicine in hand we went back to our current apartment.

Had been seeing a chiropractor for my back aches.  He finally sent me to have an M.R.I. to see what was happening to my back.  Went in to get the results from the test to find a completely empty waiting room (normally was full of people waiting for their appointments) so I was extremely uncomfortable.  The receptionist told me to go on back to the exam room to wait for the doctor.  First thing I did was start to take off my shoes, the nurse came in and told me that would not be necessary today.  She told me just to wait on the table for him to come in.  After a few nerve racking minutes the doctor came in.  He told me there was nothing more he could do for me, he was sorry.  The test had revealed that I either had spinal cancer or multiple sclerosis.  He had been able to arrange for me to see a neurologist.  All I would have to do was set up an appointment with the other doctor.

The reason they could not determine which problem I had was they had not been able to inject me with the contrast in my veins.  Went to see the neurologist, who ordered a new M.R.I. this time with a sedative so I would hold still during it and the contrast solution.  Took a few weeks to get both the test ran and get the results from it.  My next appointment with the neurologist gave me the answer I dreaded hearing.  My husband went with me to learn that I had the relapsing-remitting form of multiple sclerosis.

Years later, living in many different states of the U.S. came to the realization that I really wish it had been the spinal cancer.  At least with that disease I would probably have died by now!  Am tired of getting M.R.I.’s when I already know that I have M.S..  Would not have wasted so much money on drugs for a disease that has no cure.  The medicines just help to mask the symptoms.

 Please Help Fight Evil Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: “Embarrassing”

The shy people from the Daily Post group of Word Press would like for us to create works of art focusing on the word “Embarrassing” for today.

When am I not Embarrassed?

Seems like I am always sticking my foot in my mouth by saying the wrong things!  As I wake up in the morning after I finish using the bathroom, go about my normal responsibility of waking my husband up , who is NOT a morning person.  This process ends up making us both uncomfortable as our bodies go about their normal routine of waking (passing gas, etc.).  Once I am fully clothed, venture in to the living room.  Get the lights turned on to discover what our cat has destroyed over night.  Creep into the kitchen to get my breakfast out of the refrigerator.  Back in the front room, yell to my mate that I am out of the kitchen.

If he has not appeared in the front room yet, traverse back to the bed room to scream , “You HAVE to wake up, NOW”.  Hate doing that to him.  It embarrasses me to be that demanding of him!

If by chance it is actually his day off from work, once I have taken my medicines I get ready to take a shower.  On the off chance we have both the time and inclination, he will take a shower after I finish in preparation of a much needed time of fooling around together.  Have to make sure the cat is out of the room! (Great stress relief for the both of us, but generally ends up feeling very awkward because of me having problems getting my body to cooperate.  Imagine having your knee decide it has to spasm upward at the worst possible time, and you cannot control it!)

Please Help Fight Terrible Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: “Connected”

The extroverts of the Daily Post division of Word Press want us to us the word “Connected” in our various artistic pursuits for today.

Prefer to Remain Disconnected from the World

Face it, we live in a troubled time today.  Wars killing people in various parts of the planet.  Just here in the city in which I reside, there seems to be blood shed weekly!  At least I chose not to live in Minneapolis, where some one seems to be killed on a daily basis.

Am fortunate enough to have wonderful neighbors in my corner of the world.  We may not all speak the same language, but we get along just fine!  The kids in our neck of the woods all behave like decent young individuals should.

Their families seem to be fairly close knit surviving the generation gaps quite well.  Keeping connected throughout the years.  Having a decent play area near by seems to help bridge the gaps for them.

I prefer to remain completely disconnected from most of my relatives.  Keep in touch with my mom and one of my second cousins.  We did not know we were related before we became close friends.  Once we found out, I decided I would not hold the fact against our ability to remain friends.  We leave voice mail and FaceBook messages to each other on a daily basis.

Please Help Fight Evil Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: “Playful”

The child-like minded people at the Daily Press group of Word Press thought we needed to use the word “Playful” to base our various works of art on today.

Wish my Cat was More Playful

It is rare he feels like running around the house like someone had tramped on his tail.  Miss hearing the sound of four or more little feet flying through the house!  We adopted two cats long ago.  They were great house mates in every place we lived.  Running around during the hours we were awake.  (Considering our messed up work schedules at the time, they were very adaptable!)  Unfortunately, the last of the pair passed away back in 2010.

A month later we adopted our current cat.  He was sick when we adopted him, so we could not throw him out in the snow to break him of running to the door every time one opened like we did with our first two cats.  Now I wish we had anyway!  Every time a door opens he either runs to it or goes and hides in fear.  (Haven’t figured that one out yet.)  No longer sick, he just has a sensitive stomach.  When my husband leaves the house, either for work or other reasons, it is about a 50 / 50 chance the cat will vomit.  Separation anxiety, I guess.  Cleaning up the mess is no problem for me, but if I leave it for my husband he cleans it up and then proceeds to throw up himself.  Most of the time, I clean it up unless I am feeling ill already, or if the cat has been vomiting unceasingly which means he needs a dose of his medicine squirted down his throat.  Unfortunately, I can not do that because my hands are not steady enough.

Once the cat has his medicine he runs away and hides.  Feel bad for the animal, but get tired of cleaning up his messes!  He definitely does not feel very playful after receiving a dose of medicine.

Please Help Fight Terrible Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes