Tag Archives: Tysabri

Daily prompt from June 27, 2015: “Deprive”

The sadists from the Daily Post group of Word Press want us to design our creations of various forms of art centering on the word “Deprive“.

Do Not Deprive Any Creature Basic Necessities of Life

To do so would be giving them a death sentence!  If you have a pet, it needs to have water available at all times.  Feeding the animal should happen at least once a day (check with your veterinarian for better instructions).  Human family members deserve the same consideration as your furry friends are given!

Family members need more than food and water.  They need social contact in the form of conversations.  Getting exercise out doors together is good for the family as a whole.  Whether it be going for a walk or bike ride, you need to get the natural vitamin ‘D’ that the sun (when it is shining) provides!  If it starts raining, it is just water after all.  Maybe kicking a ball around the yard or a park together would be fun for you guys, who knows?

If you would like to contact me personally, all you have to do is fill out the form below:

Try to help all life in your surroundings the best that you can!  The life you end up encouraging to flourish might save you personally one day, you never know!

Please Help Fight Hideous Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

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Prompt for the Day: “Embarrassing”

The shy people from the Daily Post group of Word Press would like for us to create works of art focusing on the word “Embarrassing” for today.

When am I not Embarrassed?

Seems like I am always sticking my foot in my mouth by saying the wrong things!  As I wake up in the morning after I finish using the bathroom, go about my normal responsibility of waking my husband up , who is NOT a morning person.  This process ends up making us both uncomfortable as our bodies go about their normal routine of waking (passing gas, etc.).  Once I am fully clothed, venture in to the living room.  Get the lights turned on to discover what our cat has destroyed over night.  Creep into the kitchen to get my breakfast out of the refrigerator.  Back in the front room, yell to my mate that I am out of the kitchen.

If he has not appeared in the front room yet, traverse back to the bed room to scream , “You HAVE to wake up, NOW”.  Hate doing that to him.  It embarrasses me to be that demanding of him!

If by chance it is actually his day off from work, once I have taken my medicines I get ready to take a shower.  On the off chance we have both the time and inclination, he will take a shower after I finish in preparation of a much needed time of fooling around together.  Have to make sure the cat is out of the room! (Great stress relief for the both of us, but generally ends up feeling very awkward because of me having problems getting my body to cooperate.  Imagine having your knee decide it has to spasm upward at the worst possible time, and you cannot control it!)

Please Help Fight Terrible Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: “Connected”

The extroverts of the Daily Post division of Word Press want us to us the word “Connected” in our various artistic pursuits for today.

Prefer to Remain Disconnected from the World

Face it, we live in a troubled time today.  Wars killing people in various parts of the planet.  Just here in the city in which I reside, there seems to be blood shed weekly!  At least I chose not to live in Minneapolis, where some one seems to be killed on a daily basis.

Am fortunate enough to have wonderful neighbors in my corner of the world.  We may not all speak the same language, but we get along just fine!  The kids in our neck of the woods all behave like decent young individuals should.

Their families seem to be fairly close knit surviving the generation gaps quite well.  Keeping connected throughout the years.  Having a decent play area near by seems to help bridge the gaps for them.

I prefer to remain completely disconnected from most of my relatives.  Keep in touch with my mom and one of my second cousins.  We did not know we were related before we became close friends.  Once we found out, I decided I would not hold the fact against our ability to remain friends.  We leave voice mail and FaceBook messages to each other on a daily basis.

Please Help Fight Evil Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: “Playful”

The child-like minded people at the Daily Press group of Word Press thought we needed to use the word “Playful” to base our various works of art on today.

Wish my Cat was More Playful

It is rare he feels like running around the house like someone had tramped on his tail.  Miss hearing the sound of four or more little feet flying through the house!  We adopted two cats long ago.  They were great house mates in every place we lived.  Running around during the hours we were awake.  (Considering our messed up work schedules at the time, they were very adaptable!)  Unfortunately, the last of the pair passed away back in 2010.

A month later we adopted our current cat.  He was sick when we adopted him, so we could not throw him out in the snow to break him of running to the door every time one opened like we did with our first two cats.  Now I wish we had anyway!  Every time a door opens he either runs to it or goes and hides in fear.  (Haven’t figured that one out yet.)  No longer sick, he just has a sensitive stomach.  When my husband leaves the house, either for work or other reasons, it is about a 50 / 50 chance the cat will vomit.  Separation anxiety, I guess.  Cleaning up the mess is no problem for me, but if I leave it for my husband he cleans it up and then proceeds to throw up himself.  Most of the time, I clean it up unless I am feeling ill already, or if the cat has been vomiting unceasingly which means he needs a dose of his medicine squirted down his throat.  Unfortunately, I can not do that because my hands are not steady enough.

Once the cat has his medicine he runs away and hides.  Feel bad for the animal, but get tired of cleaning up his messes!  He definitely does not feel very playful after receiving a dose of medicine.

Please Help Fight Terrible Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

 

Prompt for the Day: “Childhood”

The kid minded people at the Daily Post group of Word Press want us to focus our various artistic creations for today on the word “Childhood“.

Doubt I was ever Truly a Child

Was reading alone by myself at the age of three.  Started kindergarten at the wise old age of four years old.  Was an afternoon class with people in the tiny location of Lenzburg, IL.  My mother made put on a dress for my first day at school. She personally drove me there the first time.  Took the bus home where my mom and dog waited for me at the end of the lane.  The bus driver told my mom not to worry, he would make sure I was able to get myself off the bus and safely cross the road each day.  Became good friends with the driver over the next few years.  Since the lane ended on a major highway, mom was still a little nervous at first.  Made friends at school who would be friends for the next two years at least.

The school closed down completely after my first grade year was complete.  Had to take the school bus (same driver) to the big town of Marissa for second grade on up.  (Town population back then was only about 2,436.)  In the bigger school we were separated into different class rooms.  Only saw my friends during the short recess periods.  As the year went on, some of my friends stopped being my friends, since they had more people to interact with.  I made a few new friends as well.

Upon starting the fourth grade year I was subjected to a series of tests by a strange woman.  (I.Q. tests apparently.)  They stuck me in a gifted program at school.  Was a lot of fun.  Got to read and discuss great books in that class.  Some of the kids in the program were a few years older than I was.  But we all got along fine.

Please Help Fight Evil Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: “Angry”

The infuriated people at the Daily Post group of Word Press begrudgingly selected the prompt of “Angry” to enlighten our day’s creations of various forms of art.

Am Indignant with my Health (or Lack Thereof!)

Will be forced to sit still through yet another several hour long endurance trial of lack of free motion in the infusion center while receiving my every 28-day dose of medicine that no longer seems as effective as when I first started on the drug.  At least the nurses at the site are pleasant.  Will have to rely on the local service for the handicapped individuals in the area known as Metro Mobility to get there and back.  The drivers mostly are extremely helpful in picking us up at our homes and dropping us off at our scheduled appointments.  The return trips normally happen in the same manner, unless there is a local emergency causing traffic to be blocked on the street on which you live.  Then end up stuck on the bus trip home for much longer than my body can handle (just about ended up having a grand mal seizure last time due to the heat)!

Have an appointment with my neurologist this August to try to be removed from this medication and put on another drug with a more convenient dosing mechanism.  One that only requires me to swallow a pill periodically.  Am used to having blood drawn now that I have a port in my chest that allows direct access to my jugular vein.  (My veins in my arms were ruined by over use of the drug solu medrol by a former neurologist).

Please Help Fight Evil Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: “Circus”

The ring masters from the Daily Post division of Word Press selected the prompt for today of “Circus“.

In the Centre Ring

My health (or lack there of).  Keeps me venturing to one doctor’s appointment after another.  At least it keeps me one my toes!

On the Secondary Stage

The demon / devil of an animal we adopted from the humane society back in Hastings, MN.  Think he is the feline version of Stephen King’s “Cujo“.  Has developed a taste for our blood!  Nary a day passes he doesn’t either draw blood using his claws or teeth.  Literally have scars on my legs and arms from that creature from hades.

Finally, the Third Attention Grabber

My mother-in-law.  Used to be able to get along with her until my husband had a surgical procedure preformed to remove the risk of him impregnating me.  There is too much of  a chance of having a female child who would end up cursed with the disease that runs in the female side of my mother’s family.  Refuse to force an innocent human to endure the incurable genetic mutation of our immune systems, commonly known as multiple sclerosis.  If we are ever desperate enough to desire a progeny, there are too many little kids in need of adoption!

Please Help Fight Evil Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

 

Prompt for the Day: “Orderly”

The people with haphazard minds at the Daily Press division of Word Press want to get our personal creations of art based on the word “Orderly” today.

My Life is Far From Orderly

With my body revolting against me on a daily basis, never know what to expect from second to second.  One day it may be fully functioning just to confuse me, the next might have problems just trying to literally catch my breath due to a sneak allergy attack.  You never can plan on my body behaving like a normal human’s body.

The closest I ever came to knowing what my allergy status would be like was when we lived in the higher elevations found up in Colorado.  Pretty well knew once my body had adjusted to the altitude, my breathing was pretty well stable for the first time in my life.  Upon leaving that state, have been gradually having more trouble with each breath I try to take.

Am fortunate enough to not be allergic to poison ivy or medical grade latex products.  Basically everything else in existence my body exerts some degree of allergic reaction to it being near me!  If I get stung by a yellow jacket wasp, go into anaphylaxis shock may end up going unconscious if an epi pen is not used on me!  Carry one with me where ever I go to be safe.

That is how I try to establish an orderly existence in my life, epi pens, emergency asthma inhalers, an all the other things I use to stay alive from millisecond to millisecond.

Please Help Fight Evil Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

 

Prompt for the Day: “Epitome”

The picky people from the Daily Press group of Word Press only want us to create works of art that display the best of the group’s work by choosing the word “Epitome” for today’s prompt.

Best of Show?

Have won too many awards in my time for being more than the epitome of my class.  Won grand championship with my dairy cow in 4-H.  Got the showmanship award for helping my little brother make his cow stand during the challenge.  Went home that day with a trophy and a ribbon both!

In school, spent my days at the top student in all my classes except physical education.  Only way to get good grades in that class was be on one of the school’s sports teams.  Competed in many science fairs.  Even went to state twice to participate in that competition for my projects.  Was on the scholar bowl team (we always lost) but it was fun anyway.  Competed with our school’s J.E.T.S. team.  Received a few awards there, as well.

Played in the school’s bands most of my school career until I left for college.  Got an award for my instrumental ability upon graduation from High School.  Made National Honor Society my Sophomore year.  Was a wasted award, but looked good on college applications!

Please Help Fight Terrible Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: “Countless”

The optimistic people at the Daily Post division of Word Press thought we should  create our plethora of works of art based on the word “Countless“.

I Enjoy Counting

Have been given countless blessings during my life.  Have a best friend that turned out to actually be my second cousin (I don’t hold that fact against her!).  We now reside in different states of the country, but we leave each other voice mail every day and share posts on the internet with each other.

Married a handsome young man I met while in college.  We married the day after I graduated.  Have been together for over 20 years now.  Have lived in several locations of the U.S.A.  Not planning on moving away from our current home until I pass away.

Have adopted 3 cats during our time together.  The first two while we lived in the Chicago metro area.  We took those 2 with us when we moved to Colorado.  Lived 7 glorious years in that beautiful state.  Then we moved them and ourselves to a place I refer to as HELL, most people know it as Wisconsin.  Only lasted around 8 months there.  Starting us on moving as far away as we could get from our loss of happiness.  We picked ourselves back up slowly and started regaining a stable income.  Relocated back to the place we had originally met.

My health was sliding away much too fast.  Had to start taking a new medication that was just released known by the brand name of Tysabri.  It made me feel like shit, it was taken off the market since I was not the only one having problems with the drug.  One of our cats had to be put to sleep, because it was getting sick all the time.  Had a great time meeting up with a former co-worker from my first networking job.  My husband got fed up with his work and packed  me and the remaining cat up and had his step father come down to drive me and my cat up to WI where he and his wife were living.  The rest of our belongings were driven up in a U-Haul truck driven by my husband.  He dropped the U-Hail off in the parking lot of an apartment complex my in-laws had found for us to live in located in MN.  We were told it was a handicap accessible apartment.  (Not sure what the people who said that had been smoking or taking, but it was NOT ACCESSIBLE for my electric wheelchair!)  Thankfully still had the manual one we had purchased back in 1996 with us.  Had been through much abuse during the moves, but was still functional.  Lived about seven years in the complex from hades.

Then we relocated one final time to the home we are currently purchasing here in Minnesota.  Am not counting on any moving in my future.  Like the neighbors here too much!  My counting days are at an end.

Please Help Fight Terrible Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes