Tag Archives: neurologist

Prompt for the Day: “Elusive”

The word smiths at the Daily Post division of Word Press chose the hard to define word of “Elusive” for us to base our works of art on today.

Hides From My Mental Grasp

Seems as slippery as a slimy escaping snake, the very idea of elusiveness.  Catch a glimpse of the idea for a second or two, and then it vanishes like smoke in the wind.  Face it, my mental state itself is elusive!

If you would like to give me advice on how to better control my sate of mind, all you have to do is fill out the form below:

All replies will be read strictly by myself alone!

Have seen proof that I actually have a brain located above my two shoulders via M.R.I. scan that is preformed every single year.  Apparently, the neurologist must be in as much doubt as I am on this fact!

Have you ever experienced the feeling that you are loosing your mind?

Face it, my sanity is continuously in question!  If someone finds it on top of a mountain somewhere, let it remain peacefully up there.  Every thing deserves a respite now and then.

Please Help Fight Horrible Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. If you would like to contribute to my fight against this mind stealing disease, please contribute by visit my personal website at http://saintpblogging.com/wp/ and seeing the copy of this article there!

 

 

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Prompt for the Day: “Transformation”

The people who grew up watching the “Transformers” cartoons on television chose the word “Transformation” to morph our different forms of art into a daily creation.

Transformations during my Life

Turning from full time dairy farm employee to full time student at the age of seventeen when I moved to a different state of the U.S. to attend college.  Was not used to having so much free time on my hands.  The smart person would have used the free time to concentrate on their studies, but…

Became an under-age alcoholic instead!  Was unaware that my grandfather was a former alcoholic, that is why he shied away from even the discussion of drinking.  Took me several years of continuous drinking before I got a glimpse of what I had become.  On a three day weekend when all my room-mates where out of town, threw away all the alcohol I had on hand and preceded to sober up alone.  Was a long weekend experiencing D.T.’s all by myself.  Became close personal friends with the toilet.  Now knew what the referred to as “worshipping the porcelain Gods”.  Lost track of how many times I had the dry heaves after empting the contents of my stomach.

Moved out of the dorms to various apartments.  The last one while I was in college was an apartment I shared with a co-worker.  That was fine until he decided to move out, leaving me all alone to pay for an apartment that I was used to only paying half of the rent for.  Had to find a new room mate!  Had been dating a guy for a few months, he was in the same apartment complex as me.  We decided to both live in my apartment because it was the bigger of the two.

Since I was used to sharing the place already, was not that much of a change for me, for him however he had to get over the hang up of not being able to defecate in the apartment while I was still there.  Took some convincing but I explained to him that I was used to shoveling cow manure so would be extremely surprised if he could offend my nose!  Eventually, he adapted to the situation.  A few months later…

I asked him to marry me!  Talk about a transformation, he flat out turned me down.  He told me to wait until he asked me (you confused yet?).  He hadn’t asked my father for permission.  Let him know that if he asked my father, I wouldn’t marry him.  If he wanted permission, he could ask my grandpa (the former alcoholic).  So when we travelled back to the state from which I had come, after lunch with my grandparents he went and spoke to grandpa alone.  He returned with a big grin on his face.  All he had to promise was that we not marry before I finished school and he had to take care of me for the rest of his life!

The day after graduation, we got married!  Now I transformed into being a devoted wife.  My employer gave me the week off.  Our honey moon was only an overnight affair, but I had to take care of getting all my legal paperwork that a name change requires taken care of.

A year later, I started getting sick (was not pregnant!).  My body just couldn’t decide if the room was spinning around or not (hadn’t touched a questionable drink or taken drugs) so he took me to the emergency room to try to get my body to stop vomiting.  They gave me a blood test to confirm I was not with child or had not had anything slipped into me.  The medicine they ended up prescribing turned out to just be an expensive form of Dramamine.  With the medicine in hand we went back to our current apartment.

Had been seeing a chiropractor for my back aches.  He finally sent me to have an M.R.I. to see what was happening to my back.  Went in to get the results from the test to find a completely empty waiting room (normally was full of people waiting for their appointments) so I was extremely uncomfortable.  The receptionist told me to go on back to the exam room to wait for the doctor.  First thing I did was start to take off my shoes, the nurse came in and told me that would not be necessary today.  She told me just to wait on the table for him to come in.  After a few nerve racking minutes the doctor came in.  He told me there was nothing more he could do for me, he was sorry.  The test had revealed that I either had spinal cancer or multiple sclerosis.  He had been able to arrange for me to see a neurologist.  All I would have to do was set up an appointment with the other doctor.

The reason they could not determine which problem I had was they had not been able to inject me with the contrast in my veins.  Went to see the neurologist, who ordered a new M.R.I. this time with a sedative so I would hold still during it and the contrast solution.  Took a few weeks to get both the test ran and get the results from it.  My next appointment with the neurologist gave me the answer I dreaded hearing.  My husband went with me to learn that I had the relapsing-remitting form of multiple sclerosis.

Years later, living in many different states of the U.S. came to the realization that I really wish it had been the spinal cancer.  At least with that disease I would probably have died by now!  Am tired of getting M.R.I.’s when I already know that I have M.S..  Would not have wasted so much money on drugs for a disease that has no cure.  The medicines just help to mask the symptoms.

 Please Help Fight Evil Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: “Angry”

The infuriated people at the Daily Post group of Word Press begrudgingly selected the prompt of “Angry” to enlighten our day’s creations of various forms of art.

Am Indignant with my Health (or Lack Thereof!)

Will be forced to sit still through yet another several hour long endurance trial of lack of free motion in the infusion center while receiving my every 28-day dose of medicine that no longer seems as effective as when I first started on the drug.  At least the nurses at the site are pleasant.  Will have to rely on the local service for the handicapped individuals in the area known as Metro Mobility to get there and back.  The drivers mostly are extremely helpful in picking us up at our homes and dropping us off at our scheduled appointments.  The return trips normally happen in the same manner, unless there is a local emergency causing traffic to be blocked on the street on which you live.  Then end up stuck on the bus trip home for much longer than my body can handle (just about ended up having a grand mal seizure last time due to the heat)!

Have an appointment with my neurologist this August to try to be removed from this medication and put on another drug with a more convenient dosing mechanism.  One that only requires me to swallow a pill periodically.  Am used to having blood drawn now that I have a port in my chest that allows direct access to my jugular vein.  (My veins in my arms were ruined by over use of the drug solu medrol by a former neurologist).

Please Help Fight Evil Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: “Circus”

The ring masters from the Daily Post division of Word Press selected the prompt for today of “Circus“.

In the Centre Ring

My health (or lack there of).  Keeps me venturing to one doctor’s appointment after another.  At least it keeps me one my toes!

On the Secondary Stage

The demon / devil of an animal we adopted from the humane society back in Hastings, MN.  Think he is the feline version of Stephen King’s “Cujo“.  Has developed a taste for our blood!  Nary a day passes he doesn’t either draw blood using his claws or teeth.  Literally have scars on my legs and arms from that creature from hades.

Finally, the Third Attention Grabber

My mother-in-law.  Used to be able to get along with her until my husband had a surgical procedure preformed to remove the risk of him impregnating me.  There is too much of  a chance of having a female child who would end up cursed with the disease that runs in the female side of my mother’s family.  Refuse to force an innocent human to endure the incurable genetic mutation of our immune systems, commonly known as multiple sclerosis.  If we are ever desperate enough to desire a progeny, there are too many little kids in need of adoption!

Please Help Fight Evil Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

 

Prompt for Today: “Healthy”

The inspiring people at the Daily Post group of Word Press chose the word “Healthy” for us to create our daily works of art based on it.

My Healthy Goals

I make sure I eat at least 3 decent meals each day that include the necessary fiber and fruits and vegetables.  Considering the fact fruits and vegetables are my favourite foods other than my daily small chocolate snack at 1 PM, have no problem meeting that daily requirement.

Get my daily exercise in by lifting my wheelchair in the early morning while I still have both the strength and coordination to do so.  (Hey, face it a weight is a weight!)  Water is my drink of choice, keep bottles of it stashed all throughout the house, since the water from our facets tend to have too much lead in them for our tastes.

Take the vitamins and other supplements suggested by my doctors each day.  Add that to all the medicines I take to help control my multiple sclerosis, I might as well invest in a pharmaceutical company!

Play with the cat we adopted from a humane society on the floor regularly.  Makes me move a little more than I would force myself to do otherwise.  He is also excellent at helping people fall asleep when we would rather not!

Please Help Fight Terrible Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt from a few days ago: “Newspaper”

The prompt from the whimsical people at the Daily Post division of Word Press imagined he prompt from a few days ago of “Newspaper” to enlighten our creative pursuits of that day.

My Newspaper Experiences

Have always loved writing, so I joined our high school’s newspaper staff one year.  Not being a part of the “in” crowd, didn’t work out too well.  Was not interested in the school’s sports teams or where the next parties where being held.  So I sort of fell flat on that endeavour.

Ended up appearing on the front page of the local paper almost every week, it seemed though.  Either winning scholastic awards or my involvement with Girl Scouts, 4-H, or the church I was forced to attend.  At least my grandparents were getting their subscription’s money’s worth out of seeing one of their descendant’s name and or face on the paper each week.  I hated getting the publicity for just being what I considered just another kid.

Now days, I do not even waste my time looking at a newspaper.  Face it, by the time it is off the press it is old news!  Get my information on what’s happening in the world through the internet, now.  No more wasting trees that the local animals have been using for a rest room!

Please Help Fight Evil Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: “Giggle”

The extroverted people at the Daily Post division of Word Press probably got a laugh or two out of choosing today’s prompt of “Giggle” to inspire our creations for the day.

Few things make me Giggle

I only get the giggles when I am extremely nervous.  The strangest things make me uncomfortable causing me to start an unstoppable bout of giggling.  Just my husband popping my back for me can cause uncontrollable outbursts of laughter coming from me. Annoys the heck out of him unfortunately, though.

There are many worse occasions of nervous giggling.  Most men do not enjoy being laughed at when they are undressing, just because you get a case of the undisciplined laughter.  I truly like his appearance, but a man that is well over a foot taller than you are can make you nervous occasionally.  He would never intentionally hurt me, he just kicks in his sleep like I do once in a while.

That is what happens when you marry a person who suffers from restless leg syndrome.  I just kick when I am having a nightmare in self-defence from the creature or person in the evil dream.

Please Help Fight Malicious Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes