Tag Archives: wheelchair

Prompt for the Day: “B+”

The critical people at the Daily Post division of Word Press gave us the daily prompt of “B+” to ignite our writing for the day.  In addition, they added a single critic-“Write about what you did last weekend as though you’re a music critic reviewing a new album.”

Today’s Music

In general does not appeal to my tastes.  Last weekend, I was needing my dose of Tysabri in a bad way, but only get a dose every 28 days.  Thankfully, received my latest dose on this past Wednesday.  So after that, am good for another week or so.  Then am back to the waiting game again!

Want off this medicine cycle, but until my neurologist agrees that I need to change to a different option am stuck on the never ending cycle.  When I am low on my medicine, have extremely low coordination.  Luckily the house is set up with my safety in mind.  The main floor is all flooring, no carpeting to  hinder my wheelchair’s movements.  All furniture that  I use is low to the ground.  Hurting myself takes a lot of carelessness on my part.  Am quite talented when it comes to causing myself difficulty!

Please Help Fight this Evil Disease

The medicine my neurologist has me on for my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

All help will be greatly appreciated. Thank you for your generosity!

 

 

 

 

 

Prompt for the Day: “Morphing” – Bloggering

The evolutionary team at the daily Post division of Word Press decided to use “Morphing” as today’s daily prompt.  They included a few statements.”Language evolves. The meaning of a word can shift over time as we use it differently — think of “cool,” “heavy,” or even “literally.” Today, give a word an evolutionary push: give a common word a new meaning, explain it to us, and use it in the title of your post.”

Bloggering

Bloggering is the taking part in the act of helping create more people becoming bloggers!  I have been on the recipient end of this practice for the past several months.  I have enjoyed the practice of plain old blogging daily for over a year now.  Have made friends of other people like myself who also participate on a regular basis.  We share tips and blogging strategies on a periodic basis.  Not to be confused with the more common word of blogging.  Bloggering is helping others to become more effective bloggers.  Have had several other more experienced bloggers help mentor me in the art of blogging.  Therefore by definition, they have committed bloggering!  Am very thankful they have done so.

Please Help Fight this Evil Disease

The medicine my neurologist has me on for my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

All help will be greatly appreciated. Thank you for your generosity!

 

 

Prompt For yesterday: “Now You See Me”

The actual prompt for today did not appeal to me, so I used the one from yesterday.  That prompt was “Now You See Me“.  They included two statements and a question-“You have a secret superpower: the ability to appear and disappear at will. When and where will you use this new superpower? Tell us a story.”

Invisibility as a Super Power

Growing up, I either felt like I was invisible while attending school or wished I possed a complete disappearing ability while I was trapped at home with my father!  Today, being confined to a wheelchair permanently, wish I could disappear in public.  Other than when small children are present.  (For some reason little kids get a big kick out of seeing a small 40-year old adult stuck in a manual wheelchair!  We wave at each other behind their parents backs.)

When you consider safety, wish I was extremely visible, flashing lights marching bands sort of stuff when anywhere near roads (was hit in my first wheelchair while going across a parking lot at a local mall using the clearly marked crosswalk).

Please Help Fight this Evil Disease

The medicine my neurologist has me on for my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

All help will be greatly appreciated. Thank you for your generosity!

Prompt for the Day: “If I Could Turn Back Time”

The people living in the past from the Daily Post group of Word Press came up with “If I Could Turn Back Time” for our daily prompt.  Then they asked two revealing questions-“If you could return to the past to relive a part of your life, either to experience the wonderful bits again, or to do something over, which part of you life would you return to? Why?”

First off. prompt made me think of this: Cher’s “If I Could Turn Back Time” video

Reliving Parts Of My Life

Would like to be able to live again like we did while we were in Colorado.  Both of our cats (my husband and I both still miss them) would be with us.  My ability to walk was much better.  The view from the house we were purchasing’s office window actually offered a wonderful mountain view.  Miss our old neighbors and their pets.  I was still able to hold a job and drive myself to and from work each day.  My husband got to work at a casino that allowed him to gather profitable tips each day.

Would not have agreed to move to the evil state of Wisconsin!  Made me consider taking my own life.

Please Help Fight this Evil Disease

The medicine my neurologist has me on for my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that every 28 days! Biogen (the manufacturing drug company) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

All help will be greatly appreciated. Thank you for your generosity!

 

Prompt for the Day-“Teen Age Idol”

The idol worshipping people from the Daily Post group of Word Press came up with today’s prompt of “Teen Age Idol” to get us drooling as we wrote today.  Then they asked several questions:”Who did you idolize as a teenager? Did you go crazy for the Beatles? Ga-ga over Duran Duran? In love with Justin Bieber? Did you think Elvis was the livin’ end?”

My Teen Age Idols

During both Junior and Senior High school, I followed a group known as “Genesis“.  Had one of their posters on my bedroom wall.  Had a little crush on their keyboardist Tony Banks.  Loved their “Invisible Touch” album.  Today, my husband and I are still fans of their lead singer Phil Collins.

Phil has been instrumental in various popular movies today.  Granted most of them on outside appearance are shows created for children, but mosy have a great amount of deeper meaning if you read between the lines!  The movie ‘Mulan” inspires females to be stronger than their parents brought them up to be.  “Brother Bear”  helps the younger generation learn about different Indian cultures in other parts of the world.  Learning what a totem is helped make sense of the older generation’s way of doing things.

Please Help Fight this Evil Disease

The medicine my neurologist has me on for my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that every 28 days! Biogen (the manufacturing drug company) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

All help will be greatly appreciated. Thank you for your generosity!

 

Prompt for the Day: “Modern Families”

The curious writers from the Daily Post group of Word Press chose “Modern Families” as the writing prompt for today’s creations.  They asked one single question-“If one of your late ancestors were to come back from the dead and join you for dinner, what things about your family would this person find the most shocking?”

My Dead Relatives

From my mother’s side of the family includes a native American Black Foot Indian.  She would be shocked at the amount of relatively fresh food available for our consumption.  My great-grandma Jones would be amazed at the current new treatments for the disease that she died from (was undiagnosed because they did not know what multiple sclerosis was during her lifetime).  Probably would also be amazed at the huge amount of prepackaged food selections on the table to eat.

From my father’s side of the family, they would have been shocked at the number of female descendants that were eventually produced!  For some strange reason, I was the first female child in generations!  After my generation, females are more common.  My father’s side of the family tended to eat gluttonously.  So there would have to be plenty of food on the table to satisfy them.

Please Help Fight this Evil Disease

The medicine my neurologist has me on for my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that every 28 days! Biogen (the manufacturing drug company) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

All help will be greatly appreciated. Thank you for your generosity!

Prompt for the Day: “Worst Case Scenario”

Since I tend to plan my days by starting with the worst possible outcomes and praying for the best, this should be an easy writing day for me!  The prompt they gave was “Worst Case Scenario“.  Then they asked two pretty straightforward questions: “Of all the awful possibilities, what’s the worst possible thing that could happen to you today? Now, what about the best?”

Plans for today

Got up, took my medicines, and feed the cat.  Afterwards, drank my breakfast shake like every other day.  Laid my clothes out to get dressed after taking a shower.  Took my shower.  Thought my husband would jump in the shower after I was finished.  He didn’t.  He ate a sandwich instead.  Then he stripped the sheets off the bed to be put in the washing machine!  Was under the apparently false impression we were going to have sex, after both of us had showered!

The stress relief from having sex was something I needed even if he didn’t!  Getting the stress relief I was planning on would have been the best-case scenario for me, at least.  He pled off sick the last two-day break from work he got.  Now, I’m starting to worry about this!

Please Help Fight this Evil Disease

The medicine my neurologist has me on for my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that every 28 days! Biogen (the manufacturing drug company) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

All help will be greatly appreciated. Thank you for your generosity!