The people at the Daily Post group of Word Press who apparently know my life too well, selected the word “Chaos” to light the flames for today’s various creations of art.
Welcome to My Chaos!
I do not remember a time when my life was not in an utter state of confusion. Started kindergarten at the wise old age of 4 years old with my best friend from church. Together we got in a lot of real fun messes in the play ground. We were inseparable until they closed the school after our first grade year. We then were shipped off to the big city school of Marissa, IL. Population of the town back then was a little over 2 thousand. (Bus ride was about an hour each way!) Our class was bigger now, went from 10 kids to around 35. She was in the “popular: crowd. I wasn’t. I preferred being in a group of maybe 2 – 3 kids at a time.
Then we went off to the Junior / Senior High School building as we got older. By then the school had absorbed a few more towns. Our graduating class swelled to the lower 40’s in size for that big day. She still resides in that old town. I have moved many times with my husband. He is the one constant factor in my life.
We have been through receiving a final diagnoses for the disease that has haunted my family for generations. Less than a year after our wedding, it was apparent that something was seriously wrong with my body! Eventually got the name of the illness it was multiple sclerosis! Upon getting that information, all my female relatives on my mother’s side of the family finally had an answer to their health troubles!
Please Help Fight Terrible Disease
The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes
The actual prompt for today did not appeal to me, so I used the one from yesterday. That prompt was “Now You See Me“. They included two statements and a question-“You have a secret superpower: the ability to appear and disappear at will. When and where will you use this new superpower? Tell us a story.”
Invisibility as a Super Power
Growing up, I either felt like I was invisible while attending school or wished I possed a complete disappearing ability while I was trapped at home with my father! Today, being confined to a wheelchair permanently, wish I could disappear in public. Other than when small children are present. (For some reason little kids get a big kick out of seeing a small 40-year old adult stuck in a manual wheelchair! We wave at each other behind their parents backs.)
When you consider safety, wish I was extremely visible, flashing lights marching bands sort of stuff when anywhere near roads (was hit in my first wheelchair while going across a parking lot at a local mall using the clearly marked crosswalk).
Please Help Fight this Evil Disease
The medicine my neurologist has me on for my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes
All help will be greatly appreciated. Thank you for your generosity!