Tag Archives: Multiple sclerosis

Prompt for the Day: “Worst Case Scenario”

Since I tend to plan my days by starting with the worst possible outcomes and praying for the best, this should be an easy writing day for me!  The prompt they gave was “Worst Case Scenario“.  Then they asked two pretty straightforward questions: “Of all the awful possibilities, what’s the worst possible thing that could happen to you today? Now, what about the best?”

Plans for today

Got up, took my medicines, and feed the cat.  Afterwards, drank my breakfast shake like every other day.  Laid my clothes out to get dressed after taking a shower.  Took my shower.  Thought my husband would jump in the shower after I was finished.  He didn’t.  He ate a sandwich instead.  Then he stripped the sheets off the bed to be put in the washing machine!  Was under the apparently false impression we were going to have sex, after both of us had showered!

The stress relief from having sex was something I needed even if he didn’t!  Getting the stress relief I was planning on would have been the best-case scenario for me, at least.  He pled off sick the last two-day break from work he got.  Now, I’m starting to worry about this!

Please Help Fight this Evil Disease

The medicine my neurologist has me on for my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that every 28 days! Biogen (the manufacturing drug company) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

All help will be greatly appreciated. Thank you for your generosity!

 

Prompt for the Day: “Keeping up with the Jones’”

The editors from the Daily Post division of Word Press know way too much about my family’s history when they chose the writing prompt for today of “Keeping up with the Jones’“.  My grandma on my mother’s side’ maiden name was Jones! The people from the daily post added two simple statements-“Tell us about the one luxury item you wish you could afford, in as much detail as you can. Paint a picture for us.”

Been accused of this before

After the car I was driving lost the use of the second gear had to replace it with a new one because the cost of having the transmission repaired was way outside my college budget!  When I made the over six-hour drive back to the state I came from to visit family, dropped by my grandparent’s house for Sunday lunch like normal.  Showed my grandpa my new (actually used, but new to me) car.  Grandma followed us out and pointed out she had just gotten rid of her old car just like my new one.  She told me I should stop trying to keep up with the Jones!

New Used Jeep Grand Cherokee

The car like my grandmother had eventually gave out on me.  The automatic windows no longer came down when the button was pushed.  Makes going through a drive-up window at the bank rather difficult to manage.  The last straw was when the car began to overheat and the front seat began filling up with smoke!  Pulled over in the nearest parking lot turned the car off and popped the hood release button.  Standing beside the car in a Chicago IL area parking lot, pushed the hood up all the way.  Good thing I had gloves on, because flames were shooting out of the engine!

Called my husband to let him know what had happened and get a ride back to our apartment.  I was not getting back in the flaming car again!  He let me drive his truck home while he moved our car back to the apartment complex.  His next job was to find me a new vehicle so I would be able to get to and from work each day.  Fortunately, I had a few days off so he was not pressed to get the flaming car sold and replaced with a new means of transportation for me.  He found a good deal on a used Jeep Grand Cherokee that would take my car as a trade in!  Very happy to be rid of that car.  Fell in love with the new vehicle that we nicked named “Spot” because rain would make a spotted pattern on the black surface of the vehicle.

After relocating to Colorado, it eventually started having what was later recalled by the manufacturer for the brakes kicking on and off unpredictably.  Left me stranded in the middle of a busy intersection once too many times.  We traded it in for a different used car.  I still miss Spot, though!

Please Help Fight this Evil Disease

The medicine my neurologist has me on for my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that every 28 days! Biogen (the manufacturing drug company) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

All help will be greatly appreciated. Thank you for your generosity!

 

Prompt for the Day: “Sink or Swim”

The people at the Daily Post division of Word Press must have some sort of macabre way of thinking when they came up with today’s prompt of “Sink or Swim”. They made a simple statement followed by a question- “Tell us about a time when you were left on your own, to fend for yourself in an overwhelming situation — on the job, at home, at school. What was the outcome?”

Jumped in a swimming pool

Early one summer while still in grade school at the deep end. Had been swimming for years, but the feeling of the cold liquid hitting me sent me into shock and I sank like a brick! Fortunately, an adult saw it happen and jumped in and rescued me. She forbade me of getting anywhere near a part of the pool in which I could not stand up and reach air. Was humiliating, but I did frighten her really bad.

Went away alone to college

Moved out of state to attend a school I had won a scholarship covering my costs. Was all alone over six hours from home. Became an alcoholic from the stress. Came to my senses during my sophomore year. On a three day weekend, forced myself to dispose of the alcohol and went through detox all alone.

Got a better job

Which forced me to relocate both myself and my husband to a different state. Was now getting a much better salary and was surrounded with intelligent networking professionals like myself. Loved the mental stimulus of serving our customers by fixing their networks, regardless of how long it took. Got to work with many fortune 500 company’s most secure (or so they thought) networking configurations. Won many awards within the company for my dedication to serving our customers.

Please Help Fight this Evil Disease

The medicine my neurologist has me on for my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that every 28 days! Biogen (the manufacturing drug company) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

All help will be greatly appreciated. Thank you for your generosity!

Prompt for the Day: “Resolved”

The optimistic people at the Daily Post group of Word Press came up with today’s prompt of “Resolved” to try to inspire us.  They included a single question to further direct our writings for the day – “Have you ever made a New Year’s Resolution that you kept?”

Personally

I do not make or believe in New Year’s Resolutions.  Prefer to make the more achievable daily goals.  By limiting myself to daily goals, I set my sights on goals that are designed to be able to be completed each day.  Can’t imagine setting a goal for an entire year during its very beginning!  By making  what I refer to as “SMART” ( goals – Specific, Measurable, Action-oriented, Realistic, and Time defined), they are more likely to be successfully completed as planned!

Made smart goals long before I knew what I was doing.  Been setting goals for myself since early grade school.  Long before I moved into junior high school, was put in charge of getting the school’s computers up and working each day.  My sixth-grade year helped to reorganize the entire grade school’s library.  Think I had personally checked out and read every single book in the limited collection they had on hand.

Please Help Fight this Evil Disease

The medicine my neurologist has me on for my multiple sclerosis is called Tysabri.  Trying to find the actual cost on the internet is impossible.  I remember when I first started on the drug the amount the facility tried charging me was well over $2500.  There was no way my husband and I could afford that every 28 days!  Biogen (the manufacturing drug company) has been helping us with some of the cost of the drug, but will not continue helping indefinitely.  So I have started a Go Fund Me campaign.  To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

All help will be greatly appreciated.   Thank you for your generosity!

Prompt for the Day-“Unpopular”

One of the people close to the Daily Post group of Word Press looked into my personal life history to come up with the writing prompt for today of “Unpopular“.  They included a single sentence to depress us even more “Tell us about a time when you had to choose between two options, and you picked the unpopular choice.”

When wasn’t I?

Spent my entire life growing up as an unpopular loner at school.  Always refused to let other kids copy off my work at school, would teach them how to find their own answers instead!  Taught everything from how to solve math word problems and simple science fundamentals.  Loved the impromptu science experimenting!  Preferred a good book to keep me company, than other kids.  Books offered knowledge, not judgments about your clothes.  I chose to take the honest path of not allowing other students to cheat on both homework and tests.  Did not make me very popular, but kept my conscious clear.  Would help them actually learn the best I was able to do.

Did not want the other kids to learn to depend on me always being there to answer their questions.  Wanted them to learn how to arrive at the answers correctly on their own.  This way they would be prepared for life in the real world, no matter how ugly the future got!

Please help fight my disease

The medicine my neurologist has me on for my multiple sclerosis is called Tysabri.  Trying to find the actual cost on the internet is impossible.  I remember when I first started on the drug the amount the facility tried charging me was well over $2500.  There was no way my husband and I could afford that every 28 days!  Biogen (the manufacturing drug company) has been helping us with some of the cost of the drug, but will not continue helping indefinitely.  So I have started a Go Fund Me campaign.  To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

All help will be greatly appreciated.   Thank you for your generosity!

Prompt for the Day: “Happy Endings”

The people in search of a good story, devised today’s prompt of “Happy Endings“.    They included a simple statement followed by two serious questions-“Tell us about something you’ve tried to quit. Did you go cold turkey, or for gradual change? Did it stick?”

Alcoholism

Went away to college out of state all alone at the wise old age of 17 years old.  By the end of the first semester, relied on alcohol to help me complete my programming homework.  My best code was written when I was drunk off my ass!  Took coming across a picture taken with my own camera my sophomore year for me to realize I had a severe drinking problem.  Was pretty sure I went to the room next door wearing jeans and a T-shirt like normal, but the picture showed me in my pajamas.  When and where did I change clothes, and more importantly who was with me while I changed?  Immediately, dumped out all my remaining alcohol down the kitchen sink.

Spent the weekend alone experiencing detox from my drinking habit.  Spent too much time worshiping the porcelain gods vomiting in the bathroom.  Lighter now and clearer in the mind, cleaned up my mess from getting ill.

When my roommate returned from the long weekend, asked if she was around when the picture was taken.  Turns out, I had came back to our room and changed alone in the bathroom.  Did not touch a drop for the remainder of my college career!  My programming sucked when I was sober, unfortunately,  But I stood strong on my decision not to drink anymore!

Please help fight my disease

The medicine my neurologist has me on for my multiple sclerosis is called Tysabri.  Trying to find the actual cost on the internet is impossible.  I remember when I first started on it , the amount the facility tried charging me was well over $2500.  There was no way my husband and I could afford that every 28 days!  Biogen (the manufacturing drug company) has been helping us with some of the cost of the drug, but will not continue helping indefinitely.  So I have started a Go Fund Me campaign.  To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

All help will be greatly appreciated.   Thank you for your generosity!

Prompt for the Day: “New Sensation”

The memory reminders from the Daily Post group from Word Press came up with the prompt of “New Sensation” to remind us of when we were much younger.  They also added a few words to ignite our burning minds-“Ah, sweet youth. No matter whether you grew up sporting a fedora, penny loafers, poodle skirts, bell-bottoms, leg-warmers, skinny jeans, Madonna-inspired net shirts and rosaries, goth garb, a spikey mohawk, or even a wave that would put the Bieber to shame, you made a fashion statement, unique to you. Describe your favorite fashions from days of yore or current trends you think are stylin’.”

My Sensations

Tended to be a comfortable pair of jeans!  T-shirts and or sweatshirts completed my look.  I remember when INXS released their song “New Sensation” back in 1991.  Was not my favorite type of music at the time, but was better than the music that played in our barn while we milked the cows each and every morning!  My mother made me get a permanent done by a professional beautician in junior and senior high school.  Beat the heck out of the home perms she used to give me when I was really little.

Was a loner all my life.  My best friend growing up was my second cousin.  (We had no idea we were related, until I took her with me to my mother’s parents house.  Grandma started laughing when she pointed out we were related to each other through her side of the  family!)  Considering how bad a relationship I had with my other cousins, she was the only one I got along with.  We still keep in touch today even though we live many miles away from each other.

Please help fight my disease

The medicine my neurologist has me on for my multiple sclerosis is called Tysabri.  Trying to find the actual cost on the internet is impossible.  I remember when I first started on it , the amount the facility tried charging me was well over $2500.  There was no way my husband and I could afford that every 28 days!  Biogen (the manufacturing drug company) has been helping us with some of the cost of the drug, but will not continue helping indefinitely.  So I have started a Go Fund Me campaign.  To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

All help will be greatly appreciated.   Thank you for your generosity!

 

 

 

Prompt for the Day: “Write Here, Write Now”

The humorous people of the Daily Post group of Word Press came up with today’s prompt of “Write Here, Write Now“.  Gave us one simple instruction-“Write a post entirely in the present tense.”

Write Now

Normally write in the present tense most of the time anyway, so this should not be too much of a stretch of my mental workings!  Miss too much of what used to be. to keep always writing in the past tense.  No idea what the future holds, so why waste my time writing about what may happen?

Here currently is our home since Aug. of 2014 in St. Paul, Minnesota.  Have absolutely no plans on relocating from this home.  We plan on residing here until we pass away!  We have one animal we adopted before we moved here.  So, he is our only pet currently.  He bites me way too often for my liking.  He will probably be the first to pass away (Natural causes, not me killing him!).

Currently, I spend each day that I do not have a scheduled doctor’s appointment, typing on my laptop.  Type because my handwriting is no longer legible, due to the disease called multiple sclerosis.  This activity is to help keep my cognitive thinking  as intact as possible.

Please help fight my disease

The medicine my neurologist has me on for my multiple sclerosis is called Tysabri.  Trying to find the actual cost on the internet is impossible.  I remember when I first started on it , the amount the facility tried charging me was well over $2500.  There was no way my husband and I could afford that every 28 days!  Biogen (the manufacturing drug company) has been helping us with some of the cost of the drug, but will not continue helping indefinitely.  So I have started a Go Fund Me campaign.  To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

All help will be greatly appreciated.   Thank you for your generosity!

 

 

 

Prompt for the Day: “Stroke of Midnight”

The curious people at the Daily Post group of Word Press came up with “Stroke of Midnight” for today’s writing prompt.  Then they asked two loaded questions- “Where were you last night at midnight? Would you have wanted to be somewhere else?”

Stroke of Midnight

Found me sleeping in my warm bed in Minnesota.  Would have preferred to still be residing in Colorado, but we will never be able to afford to live there again.  From what I have heard come out of that state lately, may not want to reside there anymore.  Miss the view from the office window in that house.  Gave me an unobstructed view of the Rocky Mountains over my desk there.  Gave me such a scope of inspiration for my writing while I lived there.

The house was bigger, with a huge master bedroom.  Large bedroom that I used as my office.  Had another big bedroom that we used for a spare bedroom for visitors and extra storage.  The main problem with the home was the mortgage we had on it, and it was absolutely not handicap accessible!  Was not confined to a wheelchair while we resided there, thankfully!  Since I am now, would be a really big problem.

Please help fight my disease

The medicine my neurologist has me on for my multiple sclerosis is called Tysabri.  Trying to find the actual cost on the internet is impossible.  I remember when I first started on it , the amount the facility tried charging me was well over $2500.  There was no way my husband and I could afford that every 28 days!  Biogen (the manufacturing drug company) has been helping us with some of the cost of the drug, but will not continue helping indefinitely.  So I have started a Go Fund Me campaign.  To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

All help will be greatly appreciated.   Thank you for your generosity!

 

Prompt for the Day: “A Brand New You, Effective Tomorrow”

The people from the Daily Post division of Word Press came up with the prompt of “A Brand New You, Effective Tomorrow” for today’s prompt.  They added a few statements, and a single powerful question-“Tomorrow you get to become anyone in the world that you wish. Who are you? You can choose to be anyone alive today, or someone gone long ago. If you decide to stay “you” share your rationale.”

I’d be a Successful Author

I’d become Jeaniene Frost.  She is an American fantasy author.  Maybe I should start writing less blogs about health troubles and start creating a world of my own.  Sounds like a winning idea to me!  Let my characters die from bloody fights, not withered away by some evil disease.  Always liked being a vampire at Halloween anyway.  Grossing others out with blood dripping from my mouth was fun!

Think vampires would be my main paranormal creatures in my books.  They have some great hidden abilities.  The whole not dying thing gives them an advantage over mere human characters.  Have no knowledge of other paranormal creatures, other than have read a book or two  with werewolves.  Those characters are not as fun as the vampire characters can be.  Guess you now know what is going on my “To-Do” list!

Please help fight my disease

The medicine my neurologist has me on for my multiple sclerosis is called Tysabri.  Trying to find the actual cost on the internet is impossible.  I remember when I first started on it , the amount the facility tried charging me was well over $2500.  There was no way my husband and I could afford that every 28 days!  Biogen (the manufacturing drug company) has been helping us with some of the cost of the drug, but will not continue helping indefinitely.  So I have started a Go Fund Me campaign.  To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

All help will be greatly appreciated.   Thank you for your generosity!