Tag Archives: Multiple sclerosis

Prompt for the Day: “Witness Protection”

The daredevils from the Daily Post division of Word Press came up with “Witness Protection” for today’s writing prompt.  Then they asked two seemingly simple questions-“When you do something scary or stressful — bungee jumping, public speaking, etc. — do you prefer to be surrounded by friends or by strangers? Why?”

Personally,

I prefer to keep my stupid mistakes completely to myself.  Unfortunately, when I pushed myself to become a good public speaker, in Junior and Senior High school it meant having to speak before large crowds of people.  On the positive side, I did not vomit before, during, or even after the speeches were delivered.  Actually managed to advance all the way to the state level of competition!

My speech writing skills came in handy when I went off to attend college out of state.  Now my speaking was done in classrooms full of total strangers.  There was not a single friend anywhere in sight!  Was glad to be making my mistakes in total obscurity.  Made a lot of them during the years I went to college.  Isn’t that the whole point of moving away from home?

Please Help Fight this Evil Disease

The medicine my neurologist has me on for my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

All help will be greatly appreciated. Thank you for your generosity!

Prompt for the Day-“Can’t Stand Me”

The introverts from the Daily Post division of Word Press came up with the demeaning prompt for the day of “Can’t Stand Me” to start our writing endeavors.  If that wasn’t degrading enough, they added two questions: “What do you find more unbearable: watching a video of yourself, or listening to a recording of your voice? Why?”

Why I Can’t Stand Me

Even as a child who climbed trees and all that fun stuff, was extremely shy.  Hated having pictures taken or even worse hearing my voice on tape!  The period of time I grew up in videoes of myself, fortunately, didn’t exist.  Shudder to imagine a kid growing up with a self-conscious constant feeling like I had today, where every move you make ends up on a recording somewhere!  Talk about the need for psychological help that would cause for the child or even adults.

Forced myself to enter public speaking contests in both Junior and Senior High School.  Ended up actually succeeding at the county and state levels of competition.  Talk about causing myself to have a queasy stomach!  Lucky I did not end up barfing on the stage.  Turned out to be an excellent speech writer, which came in handy during the contests.

Please Help Fight this Evil Disease

The medicine my neurologist has me on for my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

All help will be greatly appreciated. Thank you for your generosity!

 

Prompt for the Day: “Reason to Believe”

The sacrilegious people from the Daily Post division of Word Press came up with today’s writing prompt of “Reason to Believe“.  They included a statement, followed by a rather invasive question: “In Reason to Believe, Bruce Springsteen sings, “At the end of every hard-earned day / people find some reason to believe.” What’s your reason to believe?”

My Reason To Believe

Has to be the man God created for me to fall in love with and eventually marry.  My husband stands beside me each and every day helping me to survive with the evil disease I have inherited from my mother’s side of the family.  He takes me to and from all my medical appointments.  Even the dreaded evil MRI’s I have to receive at least once a year to see the damage both old and new that multiple sclerosis has inflicted on my body.  (I am claustrophobic, so being enclosed in a tiny tube for what seems like forever forces me to have to be fully sedated!)

We have lived in many different stated of the US together.  Am not planning on relocating to a different home in my lifetime.  Our current neighbors here are great.  Local transportation options for me exist, even though I am confined to a wheelchair now.  Driving is something I quit doing years ago.  Stopped long before my neurologist told me I had to.  Did not want to risk another innocent creature’s life by my driving.  So now my husband is in charge of the driving!

Please Help Fight this Evil Disease

The medicine my neurologist has me on for my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

All help will be greatly appreciated. Thank you for your generosity!

Prompt for the Day: “Learning Style”

The extremely nosy people at the Daily Post group of Word Press wanted you to use the daily prompt of “Learning Style” to influence today’s works.  The included several more invasive questions: “What’s your learning style? Do you prefer learning in a group and in an interactive setting? Or one-on-one? Do you retain information best through lectures, or visuals, or simply by reading books?”

Knowledge comes to me through Reading

Have been reading since about the age of three.  Am a voracious reader.  Read every single book the library in the grade school I attended as a child at least once.  Granted was a tiny town.  The graduating class from high school included something in the low forties number of graduates.  Actually included several small towns like Clairman, Darmstadt, and a few other postage stamp sized places.  No surprise I was at the top of my classes.  Knew the subjects better than some of the teachers there did!

In junior and senior high school, learned to take exact notes from my classes.  One teacher was dumb enough to question a proof I wrote in Geometry class.  Had to incorporate another one of my math teachers to confirm I was correct!  I used absolutely no questionable foundations in my proofs.  My main math teacher explained all she had to do to see the solution to the proof was correct was to look in the previous class proofs I had already done.

Please Help Fight this Evil Disease

The medicine my neurologist has me on for my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

All help will be greatly appreciated. Thank you for your generosity!

Prompt for the Day: “B+”

The critical people at the Daily Post division of Word Press gave us the daily prompt of “B+” to ignite our writing for the day.  In addition, they added a single critic-“Write about what you did last weekend as though you’re a music critic reviewing a new album.”

Today’s Music

In general does not appeal to my tastes.  Last weekend, I was needing my dose of Tysabri in a bad way, but only get a dose every 28 days.  Thankfully, received my latest dose on this past Wednesday.  So after that, am good for another week or so.  Then am back to the waiting game again!

Want off this medicine cycle, but until my neurologist agrees that I need to change to a different option am stuck on the never ending cycle.  When I am low on my medicine, have extremely low coordination.  Luckily the house is set up with my safety in mind.  The main floor is all flooring, no carpeting to  hinder my wheelchair’s movements.  All furniture that  I use is low to the ground.  Hurting myself takes a lot of carelessness on my part.  Am quite talented when it comes to causing myself difficulty!

Please Help Fight this Evil Disease

The medicine my neurologist has me on for my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

All help will be greatly appreciated. Thank you for your generosity!

 

 

 

 

 

Prompt for the Day: “Morphing” – Bloggering

The evolutionary team at the daily Post division of Word Press decided to use “Morphing” as today’s daily prompt.  They included a few statements.”Language evolves. The meaning of a word can shift over time as we use it differently — think of “cool,” “heavy,” or even “literally.” Today, give a word an evolutionary push: give a common word a new meaning, explain it to us, and use it in the title of your post.”

Bloggering

Bloggering is the taking part in the act of helping create more people becoming bloggers!  I have been on the recipient end of this practice for the past several months.  I have enjoyed the practice of plain old blogging daily for over a year now.  Have made friends of other people like myself who also participate on a regular basis.  We share tips and blogging strategies on a periodic basis.  Not to be confused with the more common word of blogging.  Bloggering is helping others to become more effective bloggers.  Have had several other more experienced bloggers help mentor me in the art of blogging.  Therefore by definition, they have committed bloggering!  Am very thankful they have done so.

Please Help Fight this Evil Disease

The medicine my neurologist has me on for my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

All help will be greatly appreciated. Thank you for your generosity!

 

 

Prompt For yesterday: “Now You See Me”

The actual prompt for today did not appeal to me, so I used the one from yesterday.  That prompt was “Now You See Me“.  They included two statements and a question-“You have a secret superpower: the ability to appear and disappear at will. When and where will you use this new superpower? Tell us a story.”

Invisibility as a Super Power

Growing up, I either felt like I was invisible while attending school or wished I possed a complete disappearing ability while I was trapped at home with my father!  Today, being confined to a wheelchair permanently, wish I could disappear in public.  Other than when small children are present.  (For some reason little kids get a big kick out of seeing a small 40-year old adult stuck in a manual wheelchair!  We wave at each other behind their parents backs.)

When you consider safety, wish I was extremely visible, flashing lights marching bands sort of stuff when anywhere near roads (was hit in my first wheelchair while going across a parking lot at a local mall using the clearly marked crosswalk).

Please Help Fight this Evil Disease

The medicine my neurologist has me on for my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

All help will be greatly appreciated. Thank you for your generosity!

Prompt for the Day: “If I Could Turn Back Time”

The people living in the past from the Daily Post group of Word Press came up with “If I Could Turn Back Time” for our daily prompt.  Then they asked two revealing questions-“If you could return to the past to relive a part of your life, either to experience the wonderful bits again, or to do something over, which part of you life would you return to? Why?”

First off. prompt made me think of this: Cher’s “If I Could Turn Back Time” video

Reliving Parts Of My Life

Would like to be able to live again like we did while we were in Colorado.  Both of our cats (my husband and I both still miss them) would be with us.  My ability to walk was much better.  The view from the house we were purchasing’s office window actually offered a wonderful mountain view.  Miss our old neighbors and their pets.  I was still able to hold a job and drive myself to and from work each day.  My husband got to work at a casino that allowed him to gather profitable tips each day.

Would not have agreed to move to the evil state of Wisconsin!  Made me consider taking my own life.

Please Help Fight this Evil Disease

The medicine my neurologist has me on for my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that every 28 days! Biogen (the manufacturing drug company) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

All help will be greatly appreciated. Thank you for your generosity!

 

Prompt for the Day-“Teen Age Idol”

The idol worshipping people from the Daily Post group of Word Press came up with today’s prompt of “Teen Age Idol” to get us drooling as we wrote today.  Then they asked several questions:”Who did you idolize as a teenager? Did you go crazy for the Beatles? Ga-ga over Duran Duran? In love with Justin Bieber? Did you think Elvis was the livin’ end?”

My Teen Age Idols

During both Junior and Senior High school, I followed a group known as “Genesis“.  Had one of their posters on my bedroom wall.  Had a little crush on their keyboardist Tony Banks.  Loved their “Invisible Touch” album.  Today, my husband and I are still fans of their lead singer Phil Collins.

Phil has been instrumental in various popular movies today.  Granted most of them on outside appearance are shows created for children, but mosy have a great amount of deeper meaning if you read between the lines!  The movie ‘Mulan” inspires females to be stronger than their parents brought them up to be.  “Brother Bear”  helps the younger generation learn about different Indian cultures in other parts of the world.  Learning what a totem is helped make sense of the older generation’s way of doing things.

Please Help Fight this Evil Disease

The medicine my neurologist has me on for my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that every 28 days! Biogen (the manufacturing drug company) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

All help will be greatly appreciated. Thank you for your generosity!

 

Prompt for the Day: “Modern Families”

The curious writers from the Daily Post group of Word Press chose “Modern Families” as the writing prompt for today’s creations.  They asked one single question-“If one of your late ancestors were to come back from the dead and join you for dinner, what things about your family would this person find the most shocking?”

My Dead Relatives

From my mother’s side of the family includes a native American Black Foot Indian.  She would be shocked at the amount of relatively fresh food available for our consumption.  My great-grandma Jones would be amazed at the current new treatments for the disease that she died from (was undiagnosed because they did not know what multiple sclerosis was during her lifetime).  Probably would also be amazed at the huge amount of prepackaged food selections on the table to eat.

From my father’s side of the family, they would have been shocked at the number of female descendants that were eventually produced!  For some strange reason, I was the first female child in generations!  After my generation, females are more common.  My father’s side of the family tended to eat gluttonously.  So there would have to be plenty of food on the table to satisfy them.

Please Help Fight this Evil Disease

The medicine my neurologist has me on for my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that every 28 days! Biogen (the manufacturing drug company) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

All help will be greatly appreciated. Thank you for your generosity!