The carefree people of the Daily Post division of Word Press stumbled across the prompt for today of “Frivolous“.
No Time for Frivolous Things
Wake up each morning with a set goal in mind. Get dressed, take my medicines, feed the cat, lay out clothes for the next day, then drink breakfast. Once that is finished, settle down to complete a Fill-It-In puzzle book page. (Helps keep my handwriting more readable for my husband.)
Then I retreat to the office in our house where my laptop is located. Since the only ones who can read my writing these days are myself and my husband, I type my words out for the rest of the world to read. Lost my writing ability along with the rest of my coordination to a disease known as multiple sclerosis. Lost my ability to walk as well, am now confined to a wheelchair to be able to get around in the world.
Am lucky enough to have been qualified as permanently handicapped which gives me access to a service here in St. Paul known as Metro Mobility. They allow me to be picked up from our house and driven to my appointments when needed. In theory also is used it to go to other places like the library.
Please Help Fight Evil Disease
The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes