Tag Archives: infusion

Prompt from a few days ago: “Pace Oddity”

The rushed people from the Daily Post division of Word Press came up with the prompt of “Pace Oddity” to either slow down or hurry up our creative processes.  They added a single innocent sounding question to move us through our creating process-“If you could slow down an action that usually zooms by, or speed up an event that normally drags on, which would you choose, and why?”

Want to Speed up my Infusions

The annoying one hour of getting infused with Tysabri is fine, it is the second hour I have to remain in the center to be observed that drives me nuts!  Tysabri is the medicine my neurologist has put me on to help modify the progression of my multiple sclerosis has on my body’s nervous system.  Has several annoying side effects like constant itching, compromising my immune system, and hair loss.  Don’t care about the hair loss, but the itching drives me crazier than I already am!  The compromised immune system makes me susceptible to whatever I come in contact with like athlete’s foot.

The case of athlete’s feet is making me have to visit a podiatrist to get the infection cleared up once and for all.  Probably will need to have the toenail on the big toe of my right foot removed to eradicate the fungus from my body.

Please Help Fight this Evil Disease

The medicine my neurologist has prescribed for me for my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Got my infusion on Wednesday!

Needed it since two weeks after my last infusion!

The infusions are not lasting as long for me as they did when I started on this medicine back in 2010.  When I first started getting Tysarbi infusions, I would be able to fully function until my next dose 28 days later.  2012 started seeing a decline in the length of benefits.  Would only remain functional 3 and a half weeks after infusions.  During the second half of 2014 went down to 3 weeks flat.

Now the infusions only last two weeks.  Then I am back to being completely clumsy 24 hours a day.  Good thing the house we purchased is set up for my lack of coordination!  Have handle bars on the upstairs bathroom toilet  and a safety rail on my side of the bed in our bedroom.

Even better is the wheelchair ramp that leads from our main level back door all the way to the gate out our fence by the detached garage’s driveway!  Now I can actually leave the house unassisted.  Whole new concept, independence!