Tag Archives: Illinois

Prompt for Today: “Crossroads”

The indecisive people from the Daily Post group of Word Press decided to make us face our indecision points in life by using “Crossroads” for today’s prompt for our artistic works.

Had Many Crossroads

The first major one was leaving the state in which I grew up to attend college alone.  Turned out the new site let me be introduced to many new cultures and people.  After a few years there, I met and fell in love with the man I would end up marrying.  We moved in together for about two years before our wedding occurred.  Had promised my grandpa that I would not get married until I had graduated from college, so the day after graduation was our wedding!

Had a full time job before I graduated, was happy with it at the time until a co-worker passed away.  He literally was the voice of the company that was familiar to all employees, customers, farmers, and every one else that had contact with the place.  I could not handle the man they hired for his replacement or the empty desk.  So I went looking for a new job else where.

Our new family (my husband and I) would have to relocate.  Wound up landing an interview with a consulting firm based out of Texas’s Chicago location.  Caught a flight from Springfield, MO to Chicago’s O’Hare airport.  The manager I was supposed to meet actually met me with a sign with my name on it welcoming me.  He had a limo waiting to take us to his office!   Met a few of who would become my co-workers there.  He had some people do face to face interviews with me.  Ended up liking them all and had a great time.

Later that evening, we went to what I would learn happened ever month a team meeting.  Since I would be the first female employee on the team they were all trying to be too damn polite around me.  So I told them a dirty joke completely straight faced.  Had them rolling and breathing better.  Became one of the guys on the team.  They took me to my hotel where I could get a little sleep.

Was picked up in the morning to receive my offer letter for the job I had been given the chance to accept if me and my husband would be willing to relocate to the area.  Caught a flight home to Missouri where my other half picked me up at the airport.  He called his employer to turn in his notice of resignation as I contacted my boss to warn him I would be resigning at the end of the week.

This would begin our relocation phase.  Would end up adopting 2 wonderful cats.  Moving to Colorado.  And the story just keeps going!

Please Help Fight Terrible Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: “Clarity”

The cloudy people at the Daily Post group of Word Press submitted today’s prompt of “Clarity” for us to create our indistinct works for today.

Am I Being Unclear?

The prompt for today emphasises clarity.  I prefer to work in a lucid state of mind, but since my mental state generally prevents me from doing this, I display my insanity for the world to see on a daily basis!  Feel free to join me in my cell at the loony bin once they catch on to my masquerades.  The more the merrier!

Am pretty sure the insanity runs in my family.  My mom and I are both nuts!  The scary thing is she works at the local school district back home where they entrust her with junior – senior high school aged children.  We have both spent our time in hospitals getting treated for loosing our minds.

Getting lost both physically and mentally is nothing new to me.  Got lost once when I was little in the tiny town (was smaller when I was little than it is now) of Marissa, Illinois.  Was in search of a yellow truck that was supposed to be delivering Girl Scout supplies for our troop.  We were actually looking to find a yellow colored delivery truck.  The delivery company’s name was “Yellow” not the actual truck!  Was a long day of wandering around the streets of town looking for trucks.

Please Help Fight Evil Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: “Fight”

Wouldn’t have expected the cowards at the Daily Post division of Word Press to chose the word “Fight” to inspire our creations for today.

I Fight Continuously

Started out fighting the faulty educational system where I grew up in in the middle of nowhere in southern Illinois.  Engaging in battle with the doctor I was forced to use as a child who always commented I was crazy or imagining things.  Went away to college to discover I actually had a disease known as multiple sclerosis.

A chiropractor stumbled upon this observation after me seeing him continuously for my neck and back being out of alignment.  He sent me for my first M.R.I.  The procedure was not just like an X-ray like he told me it would be.  They strapped my head down onto the table then fed the table into a long tiny tube (happen to be claustrophobic).  When they pulled the table out they tried to inject me with God knows what (am needle phobic, too).  Tried literally jumping off the table (remember the head was strapped down)!  Not a good move.  Since I had changed my position, they would have to terminate the session.  So I slinked back home to await the chiropractor’s call on the results of the failed test.

When he finally set up my next appointment, I reported prepared for a battle.  First off, the procedure was nothing like a simple x-ray, and now I had a really sore neck from having it secured to the table then flying off!  There were no other patients in the office which were really weird.  Normally the waiting room was full and noisy.  The nurses were even nicer than usual (they were extremely nice normally).  Was afraid someone had died or something.  They showed me to an exam room, so I started to get undressed for a spinal adjustment, they told me that would not be necessary.  The doctor just wanted to talk to me today.

Now my nerves were really starting to get the better of me.  I had done absolutely nothing wrong during the M.R.I. procedure, I just had been frightened.  When the doctor came in, he apologized to me for no longer being able to help me.   I either had spinal cancer or multiple sclerosis.  To get the correct diagnosis, I would have to undergo another M.R.I. this time using the contrast the nurses tried to inject in me last time.  He also suggested I try taking the valium before the next scan.  I told him that the drug had no effect on me the last time I was given it.  So he drafted the paperwork to have me sedated for the test.

After being fully sedated, I managed to sleep through them running the first round of scans and then injecting me with the contrast dye for the second round of scanning.  He also had gotten me an appointment scheduled with an area neurologist.  A few weeks after the scan was completed, I met with my first neurologist.  He told me I definitely had multiple sclerosis.  This is a disease I will be fighting for the rest of my life, unfortunately!

Please Help Fight Destructive Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

“I don’t care anymore”

“This Is Your Song” was the daily prompt for Feb. 2nd 2016. They gave us one line of directions-“Take a line from a song that you love or connect with. Turn that line into the title of your post.”. Was the song that moved me most during junior-senior high school while I was growing up in the backwaters of southern Illinois.  The song was written by my personal favourite musician Phil Collins “I don’t care anymore“.  Was also enamoured by his song, “Take Me Home.”

Basically,

back then listened to anything to get away from the hell in which I was living at the time!  Managed to finally escape out of state to attend college at the ripe old age of 17.  Started listening to new music groups then.  After graduating from college, got married the next day to the love of my life.  We both listen to the same types of music.  Older rock, country, and a few ecliptic favourites.  Phil’s current works that are included in movies we both like and enjoy are on our play lists today!

After over 20 years of marriage, our music tastes have not changed too much.  The new music that comes out today, just doesn’t appeal to either of us!

Please Help Fight this Evil Disease

The medicine my neurologist has put me on for my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: “Keeping up with the Jones’”

The editors from the Daily Post division of Word Press know way too much about my family’s history when they chose the writing prompt for today of “Keeping up with the Jones’“.  My grandma on my mother’s side’ maiden name was Jones! The people from the daily post added two simple statements-“Tell us about the one luxury item you wish you could afford, in as much detail as you can. Paint a picture for us.”

Been accused of this before

After the car I was driving lost the use of the second gear had to replace it with a new one because the cost of having the transmission repaired was way outside my college budget!  When I made the over six-hour drive back to the state I came from to visit family, dropped by my grandparent’s house for Sunday lunch like normal.  Showed my grandpa my new (actually used, but new to me) car.  Grandma followed us out and pointed out she had just gotten rid of her old car just like my new one.  She told me I should stop trying to keep up with the Jones!

New Used Jeep Grand Cherokee

The car like my grandmother had eventually gave out on me.  The automatic windows no longer came down when the button was pushed.  Makes going through a drive-up window at the bank rather difficult to manage.  The last straw was when the car began to overheat and the front seat began filling up with smoke!  Pulled over in the nearest parking lot turned the car off and popped the hood release button.  Standing beside the car in a Chicago IL area parking lot, pushed the hood up all the way.  Good thing I had gloves on, because flames were shooting out of the engine!

Called my husband to let him know what had happened and get a ride back to our apartment.  I was not getting back in the flaming car again!  He let me drive his truck home while he moved our car back to the apartment complex.  His next job was to find me a new vehicle so I would be able to get to and from work each day.  Fortunately, I had a few days off so he was not pressed to get the flaming car sold and replaced with a new means of transportation for me.  He found a good deal on a used Jeep Grand Cherokee that would take my car as a trade in!  Very happy to be rid of that car.  Fell in love with the new vehicle that we nicked named “Spot” because rain would make a spotted pattern on the black surface of the vehicle.

After relocating to Colorado, it eventually started having what was later recalled by the manufacturer for the brakes kicking on and off unpredictably.  Left me stranded in the middle of a busy intersection once too many times.  We traded it in for a different used car.  I still miss Spot, though!

Please Help Fight this Evil Disease

The medicine my neurologist has me on for my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that every 28 days! Biogen (the manufacturing drug company) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

All help will be greatly appreciated. Thank you for your generosity!

 

Prompt for the Day: “Safety First”

The boy/girl scout minded people of the Daily Post division of Word Press chose the prompt for today of “Safety First“.  The followed by giving us a single statement “Share the story of a time you felt unsafe.”

Being confined to a wheelchair

Leaves me constantly feeling unsafe.  Am confined due to a disease commonly known as multiple sclerosis.  Was the first in my family to be diagnosed.  Once I received the diagnoses, all my female relatives on my mother’s side of the family got an answer to their on going health problems as well.  Apparently, the idiot doctors in southern Illinois weren’t familiar with the illness.  My mom, her sister, my two female cousins, all have it.  We suspect my grandmother suffered from it as well, but she was dying from smoking induced cancers so her diagnoses was not pursued.  My great grandmother may have had it, since it was not a known disease at her time.  She died from something that sounded like she had an untreated case of the evil disease to me!

Have let the local emergency services in the area know I am stuck in a wheelchair and have a ramp located at the back door of our house.  Also informed them of my severe allergies, like the anaphylactic shock I go into when stung by wasps or bees.

Am also claustrophobic which causes problems when I am forced to have a MRI to check on the damage from the disease.  Hate getting into that stupid tiny tube where they bombard my body with beams from an electromagnet to observe the condition of my spine and brain.

Have a fear of falling, since I get waves of feeling like I am out in the middle of the ocean while I am sitting still.  Another symptom of the disease.  Have managed to actually fall off an exam table at a doctor’s office while laying on my back.  My husband claims I passed out, but I always thought you fell backwards when you pass out!

Please help fight my disease

The medicine my neurologist has me on for my multiple sclerosis is called Tysabri.  Trying to find the actual cost on the internet is impossible.  I remember when I first started on it , the amount the facility tried charging me was well over $2500.  There was no way my husband and I could afford that every 28 days!  Biogen (the manufacturing drug company) has been helping us with some of the cost of the drug, but will not continue helping indefinitely.  So I have started a Go Fund Me campaign.  To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

All help will be greatly appreciated.   Thank you for your generosity!

Prompt for the Day- “This Is Your Life”

A gentleman from the Daily Press suggested today’s prompt of “This Is Your Life“.  Then they added a question followed by a statement:”If you could read a book containing all that has happened and will ever happen in your life, would you? If you choose to read it, you must read it cover to cover. ”

Considering How Screwed Up My Life Has been This Far…

Less than a year after marrying the man of my dreams, was devastated by a diagnoses of multiple  sclerosis.  He stood by me even after the diagnoses was confirmed.  Has continued to help me survive with it for 20 years!

Has not been all roses and rainbows, though.  We started out living in Missouri where we both had decent enough jobs.  Both were not profitable, had to pay off my student loans after all!  Got a job offer that required us to move to upper Illinois.  Was sort of my dream job as a network engineer.  Just think, I would be in charge of telling data where to go and how to get there for a living!  Paid really well, too.

We did not want to continue living in the Chicago-metro area for the rest of our lives, though.  Got myself transferred to a different branch of the company located in the Denver, Colorado metro area.  Got an appointment with a neurologist there.  He got me started on Avonex to help counteract the disease from taking away my abilities to live.

Got to go skiing for the first time with my husband our first Christmas there.  He was used to cross country skiing, down hill skiing wasn’t that different.  I was a green grass ski bunny in my skiing ignorance.  After living for a year in a crappy apartment there, we tried buying an older home in Aurora.

Started making improvements to the house little by little.  Invested in a bunch of Craftsman tools.  Power tools were my thing.  Drooled over them every time I entered the Sears store.  Contracted to get our windows replaced at a discount by allowing the company to advertise the improvements on our front yard.  There was no air conditioning in the house, so we had a swamp cooler installed on the roof.  With two mortgages on the house, things started feeling tight.

Made friends with the neighbors around the cul-de-sac where we lived.  My employer was starting to have problems with finances.  I found another networking company to work for in the area.  The new company didn’t keep the promises they made during my interview.  I did not want to have to travel more than two hours each way to get to and from my job sites.  They wanted my to work far south of Colorado Springs on a contract they had secured there.  I refused.  They had me do busy work, so I started looking for a new job on the side.

Found a job at a Rhythms Netconnections as a layer three engineer.  (That means I told data where to go and how to get there!)  Had great fun working on the site.  Noticed that things were starting to go down hill as far as the company was concerned after a few months working there.  Had been investing in the company’s stocks by having a portion of my salary being diverted to the company.  We were not allowed to withdraw our stocks when we needed to be able to have access to our money.

They started limiting the services we provided to our customers by changing what networking options were available.  We had to change our layer three customers over to a crappier layer two service.  Instead of controlling routing, the customer’s services to a site were either on or off.  This was no longer my dream job.  I was working on their third shift team.  We were told the entire company had to report at 9 AM one morning regardless of whether we were scheduled to work that day or not.

We were divided into two groups.  The group I was in was told to go over to the other side of the building.  We waited there for around a half hour before we were told that our services were no longer needed with this company.  They gave us papers explaining our severance packages, and then we were escorted out of the building.

Went home to file for unemployment for the first time in my life.  Had two mortgages with limited income coming in from my severance package.  Started looking for a job.  There were none to be found in my field of work.  After more than a year of searching, landed a contract job for the Department of Homeland Security about August of 2003.  Did not have to report to the site until later that year.

Once we started working full time on site, managed to get my shift changed to third shift since that was what my husband was working at the time.  Never did actually obtain the clearance that was needed to give me access to the country’s routers due to my lack of clearance.  Somehow manage to become the third shift manager.  (Remember, we are talking about our national security?)  Still had no clearance, but was in charge!

My husband decided he wanted to purchase a bar back in Wisconsin.  So I resigned my position on contract.  He found us a house there to purchase.  I started packing our home up the best I could.  We contracted a moving company to relocate our belongings for us.  The moving truck came and took everything with them and left us our sleeping bags and a suitcase of our clothes.

We said good bye to our neighbors and drove away to resettle in WI.  When we got to our new house, it was not what I was expecting.  Much smaller and on a main highway!  December is not a pleasant time to move to WI.  Am very allergic to smoke.  The house was heated by a wood burning  heater in the basement.  No one lived close by with which to talk to on a day to day basis.  Got really lonely out there.  The woods had wolves that lived in them and frequently came up to our back door.  There was a bear that liked to scratch itself on a tree near the house.

There was a herd of deer that would feed in our back yard area.  Wild life was not scarce in our area.  Bobcats would climb on top of the garage.  Had a bobcat kitten come up to the front window once.

Since my income no longer was coming in, had to take a job at the only place hiring in the area.  Working there caused me to try to commit suicide.  Called a friend to say good bye one last time.  She got the state police to knock on my front door.  They took me away to a hospital.

After several days was released from the hospital to my husband.  We filed for bankruptcy due to all the bills that had been accumulated.  After that, we relocated to southern Illinois where my deceased grandparents used to live.  Was not a good retreat.  Felt like we were crawling back with our tails between our legs in shame.

My husband was able to secure work in a neighboring town in the retail business.  He started rebuilding our finances.  Applied for Medicare Disability Income, due to the fact I was no longer able to walk.  After a little over a year we managed to move back to where we first met in Missouri.  My income from medicare started to be dependable.

He had transferred his position where he worked in IL to a different site in MO.  The MO site didn’t suite his style, so he transferred to a different section of town’s site.  That one worked a little better for him.   Got an electric wheelchair through medicare.  He traded in my car to get a van so we could move my wheelchair if we needed to change our current location.

He got fed up with MO, so he wanted to relocate to Minnesota to be closer to his parents.  They claimed to have found a handicap accessible apartment complex for us to live in.  (Have no idea where they got the impression it was accessible from!)  Never been in a more inaccessible building in my life!

Tried moving down to a lower floor, still inaccessible.  Was stuck living there for close to seven long drawn out years.  Once we had accumulated enough money for a decent down payment on a house, we started looking.  In August of 2004, we started purchasing an older home in St. Paul.  There are still many things that need to be improved, but we will get it done eventually!

Please help fight my disease

The medicine my neurologist has me on for my multiple sclerosis is called Tysabri.  Trying to find the actual cost on the internet is impossible.  I remember when I first started on it , the amount the facility tried charging me was well over $2500.  There was no way my husband and I could afford that every 28 days!  Biogen (manufacturing drug company) has been helping us with some of the cost of the drug, but will not continue helping indefinitely.  So I have started a Go Fund Me campaign.  To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

All help will be greatly appreciated.   Thank you for your generosity!

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