Tag Archives: family

Infusion this past Wednesday

Got up at 5 AM so that I could get a shower in before we left for Minneapolis.  Used the bathroom and got dressed.  Tried waking my husband up again, since the alarm had not had the desired effect.  Turned the bedroom lights on.  Went into the front room and turned on the lights there, so I could start taking my morning medicines.

Returned to the bedroom and told him he had to get up.  Then I laid out my clothes to wear to the infusion center.  Fed our cat, then went into the front room to drink my breakfast.  (Meal supplement shake, not alcohol like you were probably thinking!)  Once I had finished breakfast, had to take a good bowel movement.  Ended up stopping the toilet up.

My husband had to take the plunger resolve to the problem.  When he was done, he had to use his bathroom which is downstairs.  He came back up, so I took the three ibuprofen tablets I need to kill the pain of the water hitting my sub-pubic catheter.  Went into the bedroom and got undressed.  Went into the bathroom and removed my underwear.  Turned the water on hot to get a warm temperature in the bathroom sink.  Let my husband know that I was ready to get in the shower.

He came in and helped me onto the shower chair in the tub.  Since I had gotten the water to a warmer temperature in the sink, you would think the water coming out of the shower head would be warm to start with.  Never works that way, unfortunately.  Took a few seconds to get the warm shower I was hoping for, but eventually it warmed up enough to start washing my back with my shower brush.  Put the brush down on the shower floor and got my hair wet.  Reached around with my left hand to grasp the shampoo from the side of the shower.  Got my hair covered with the sham (fake) poo (shit) and proceeded to scrub my hair.  When my hair had been washed, started to rinse it out completely.  Made sure it was out of my eyes, then reached to the right side of the shower to get my conditioner.

Smoothed my hair down then started applying conditioner.  Once my hair had been thoroughly, conditioned put the bottle back where I had gotten it from.  Picked up the soap from the shelf and started washing my body.  When I finished soaping up, rinsing started.  Used a plastic cup to help reach where the clean water from the shower head wasn’t reaching.  Then I started rinsing out the conditioner I had applied to my hair.  When that was complete, did one last rinse down my back, then turned the water off.

Yelled to let my husband know I was finished with the shower.  He came and put me on my wheelchair.  It was then that I noticed I had forgotten to put what we affectionately refer to as my “crack” (because it dries my crack) towel on my wheelchair.  Had him grab it, while I transferred to the toilet.  He put it on my wheelchair, so I transferred back to my wheelchair.  He used my bath towel to dry his hands then he gave me the towel so I could get myself dried off.  Hung my towel back on the towel rack, turned off bathroom lights, then went into the bedroom.

Got fully dressed and returned to the front room.  Had my husband apply a small amount of Lidocaine and Prilocaine cream to the port on my chest that goes directly to my jugular vein.  That way it would be numb before the nursing staff had to access the port for the infusion at 11:30 AM.  For some unknown reason the numbing cream has to be on for at least 3 hours before nurses can safely accessing my port, have really good reflexes if I am not fully numb.

Since I was now completely ready, he went downstairs to take a shower.  I grabbed my shoes out of the bedroom, than came back and started doing a fill-it-in puzzle until he was ready to get his breakfast.  Put my shoes on, then moved the bag with all my supplies for the day out where he could get to them.

He took my bag and went to move the car to the driveway for our detached garage where my ramp ended at the gate to our backyard.  He came back into the house to brush his teeth.  I grabbed my emergency inhaler and cell phone and went out the back door for some fresh air, since it was still cool outside.  Came back up the ramp and reopened the back door so he would now where I had disappeared to.  Went back down the ramp and out the the back gate.  Heard the car make a little noise.  He had unlocked it from across the yard!

He locked up the house and then came and helped me get into the car.  Since we were way ahead of schedule we decided to go ahead and visit the store where he had planned to go after he dropped me off for my infusion.  The store is where I get my urine bags from.  Had used the last of my overnight urine bags a few days ago.  He was also supposed to get me a  new leg bag,  The leg bag is what I use when visiting a normal doctor, since it can have urine samples drawn from it.  He came out of the store and we drove to the infusion center.

The center was short staffed, so they didn’t come out to bring me back until 11:45.  Went over the recliner the nurse had selected for me to get my Tysarbi infusion in.  We ran through the required questionnaire.  Like what was my full name, had I experienced any new or worsening symptoms, had any steroids administered, or other new medications. Since I give any changes to my neurologist before I had arrived, told her he had cleared me for my infusion.  She got the apple juice and two ibuprofen tablets I had requested.  With that complete, she placed the supplies to access my port on my right side of the table.  Asked if she was going to check my blood pressure, so I could finally cross my legs.  She had thought it was already done.  She got the equipment, took my blood pressure and temperature.  Now I got to cross my legs like normal.  Unbuttoned my shirt so she could clean the cream off my port.

I took my face mask and put it on.   Not sure why my body decided to try chewing on the face mask, but the nurse asked if it tasted good or something.  Hadn’t even realized what I was doing.  She pulled it out of my mouth and we both started laughing hysterically!  At least I made her day.  For the record, the masks don’t have any flavor to them.  She cleaned the site and sterilized the area before inserting the infusion needle.  Since I had let the cream on the needed time, didn’t even feel a thing.  There was a good blood flow coming from my port, she flushed saline down the port to remove the traces of my blood from my line.  Then she hooked me up to receive my Tysarbi dose.  She asked if I needed anything else.  Told her I brought all the supplies I needed with me like normal.

Began playing solitaire on my tablet, while eating a fruit and grain bar for a snack.  Washed it all down with the apple juice the nurse had given me.  After my snack was complete, read a werewolf romance book on my tablet.  Normally, prefer vampire love stories but this was a good read.  Went back to playing solitaire.   The infusion machine started beeping like it was done, but 9 out of 10 times it lies.  It was lying again.  Another nurse came and jiggled the line and quieted the machine.  She told me I still had about 15 minutes of dripping to go.  So went back to playing solitaire.

Finally, the machine started beeping again.  Was back to the first nurse.  Asked her if it was lying again.  Nope, I was actually finished with my bag of medicine.  She unhooked me from the machine, flushed my line with saline again.  Asked her to place my wheelchair where I could reach it, because I needed to use the restroom.  (Had already tried to reach it from the recliner they had put me in.  Have arms that are as short as the rest of me!)

She asked if I needed help wheeling over to the bathroom.  Told her the exercise would be good for me to move myself over on my own.  I get cramped up from sitting still for so long.  The bathrooms actually inside the infusion center are much better than the public ones in the building.  Was washing my hands after using the toilet and accidentally managed to spill a little of the soap on the container.  Was great soap, but it had the appearance of human snot.  Let the nurse know what was actually on the soap bottle, so it could be cleaned up.  Have a tendency to make bigger messes when I try to clean things up for myself, so I didn’t even attempt it.

Returned  to the recliner I was assigned to be in.  Went back to playing solitaire.  They set a timer when our infusions are complete so they can observe us for a full hour.  The hour drags by extremely slow, makes watching paint dry seem like an interesting adventure!  The timer went off, the nurse came over to push heparin down my port so it would remain viable for next time.  She took my blood pressure one last time.  I called my husband to let him know I was on my way out of the infusion center.  The nurse pushed me with my arms full of my bag, emergency inhaler, and my cell phone.  He was no where to be found.  The nurse took me out the door, I told her he was probably using the restroom.  Sure enough, just as she started walking away, he came out of the men’s bathroom.

He made the comment that she didn’t stay to talk with him like normal.  Let him know they were really short staffed today.  He took me out to where we had parked our car, and helped me get in to the front passenger seat.  Once I was safely out of my wheelchair, he took it and collapsed it to put in the back of our vehicle.  Traffic was behaving oddly (turns out there was an accident killing one of the workers at the new Viking’s stadium).  Took a few wrong turns to make it safely out of the area of the clinic.

Headache started on the right side of my head.  Ignored it like normal.  We made it back to our house.  Jason got my wheelchair out and brought it to my side of the car.  Had more strength from the infusion, but the pounding in head kept me a little slower than normal.  He put the my bag on my lap, put the other bag containing my urine bags on top, then he gave me my emergency inhaler and cell phone back.  He pushed me with all the crap on top up the walkway to the house.

My husband unlocked the house doors, took my bags and let me take myself in.  He let me start putting my stuff back where it all belonged.  Then he left me to get out of my shoes as he went to go get us a meal from the local Culver’s restaurant.  While he was gone, I grabbed a more comfortable pair of shorts and went into the bathroom to empty my urine bag.  With that complete, I removed the bag and put on my catheter plug.  Put the empty urine bag up on the shower chair, put on my comfortable shorts, then cleaned up from using the restroom.

Took my normal 3 PM medicines, since I missed getting to take them.  Our cat had barfed on my husband’s recliner while we were gone, so I cleaned that up.  Heard the animal getting sick in another room, so poured myself a glass of cranberry grape juice and put it on the kitchen table.  Then went in search of the mess I had heard being made.  It was right in front of my electric wheelchair by the back door.  Cleaned that up, and heard it get sick again!  This time it was in MY office!  Not in one place, but two.  Was coming to my wits end with the cat!  Got those messes cleaned up.  Was finally washing my hands when my husband made it home with our meals.

Cat vomit makes my husband lose the contents from his stomach.  That’s why I clean the messes up for him.  He put my meal on the table by the drink I had poured.  With a pounding headache, I began eating.  It was late enough by the time I finished, took my quarter to five pills.  noticed I had forgotten to put my anti tip bar back on my wheelchair.  Got that issue resolved.  My spouse went down to his man cave to play video games.  My headache and I switched the television to the right channel to receive the 5-o-clock news when it came on.




Prompt for the day: Red Pill, Blue Pill

The prompt for the day from the daily post at wordpress.com is Red Pill, Blue Pill.  The people from word press come up with some great starting points for any blogger to sharpen his thoughts with.  Today’s prompt makes me think of the movie “The Matrix”.

Matrix pictureThe movie had me questioning what I thought was reality back in 1999. Had just started to get settled in the state of Colorado.  Had several new friends at work, who were all older men.  Was the only female on the team.  There was way too much drinking involved in the company’s events like weekly meetings and outings like ski trips.

My reality was extremely messed up when I left the company due to not liking the new person in charge of our team.  Just do not tend to get along with slimy sales type of people.  He was trying to get me to service two different companies located in completely different parts of the Denver metro area.  So, I found another consulting firm who was happy to receive my skill set.  Turned out the new company did not stick to the agreement for my employment.  Needed to work closer to the house we had purchased.  Driving all over the metro area did not agree with my multiple sclerosis.  Was starting to cause severe health problems.

So I quit that job to work for a startup DSL company called Rhythms Netconnections.  After about two great years working there, the company was forced to file for bankruptcy.  For the first time in my life, I was laid off from my work!

Talk about stepping into the Matrix!  Had to file for unemployment.  Was watching CNN as the 9/11/2001 attack occurred at several different sites in the U.S.A. felt like a really awful movie.  Just wanted to be able to take a pill and make it all go back to my old image of reality!

The country has not recovered from the attacks since that day.  Please give me a pill to make reality return!


Three Coins in the Fountain

I start my blogs, if I am out of decent subjects to write about,  by going to the following site for inspiration.  Here they post a new prompt each day.  Today’s prompt is: https://dailypost.wordpress.com/dp_prompt/three-coins-in-the-fountain/

The only place I saw fountains while growing up was at the closest mall which was around an hour’s drive from the house I lived in as a child.  At most, I might throw a single coin in there.  Who actually throws “Three Coins in the Fountain”?

Apparently, others must have had more money to waste than I did.  Was saving my money for the annual local festival when I was little.  After I grew out of saving for festivals, I started saving for my college education.  When you work for a living (filed my first tax return at age 12), you have to watch where every penny goes!

Started saving pennies with my grandpa, who looked for the elusive “Lincoln Wheat Penny ”  which had become rare by the time I started collecting them.  He had accumulated a different penny that had been minted in every year he was alive, by the time he passed away in 2002.  We used to look at all the other coins he had collected from all over the world during his travels while serving in the U. S. Navy.  I had found a valuable coin over in the driveway of my other grandparent’s home, which I faithfully brought to show to my grandpa who had experience with coins from all over.  Left the coin with him for safe keeping.

Unfortunately, when he died I left the coin with my grandma for use towards her medical bills.  The coin was stolen by one of my other relatives, who was a kleptomaniac.  Grandpa has left grandma with enough life insurance, so she didn’t really need the coin anyway.

Interesting few days

It started with an appointment with a nurse from my neurologist’s office.  She was going over the results from my neuropsych testing back in June 2015.  Turns out they discovered I was color blind!  Knew that since I was in high school.  Am both depressed and anxious.  No surprise there, either.  The appointment cost my normal co-pay for a specialist of $50.  They also determined I had a spatial vision problem.  In English it means I have problems judging distances.  Learned that one a long time ago the hard way.  Putting a full glass of liquid on a flat surface like a table is a challenge for me.  Good thing I haven’t driven since before we moved into this state back in 2008.

So the Physician’s Assistant  prescribed Lexapro  5 MG once a day for the depression and anxiety.  The only side effect I’ve experienced so for (maybe) a migraine like head ache.  The reason I  said maybe is there was a pressure front moving through the area at the time.  Pressure fronts can trigger migraines in me.

After that was. over went downstairs for my normally scheduled infusion of Tysarbi.  While there, I asked the nurse if Tysarbi could be causing my case of Athlete’s foot.  She said it is possible since it lowers my immune system’s ability to fight off infections.

The next day my husband went downstairs to start our laundry, when my cell phone rang.  It was my father-in-law calling trying to get in touch with my husband.  He had been in a car accident while on his way back from a trip to the state of Texas.  He told me not to worry, he had just bruised his hand a little.  Told him I would have to hang up so that I could call my husband.  Called him and asked him to call his step-father who had been in an accident.  My husband got in contact with my father-in-law and agreed to meet him at the mechanic where the vehicle had been towed to.  We used to use the mechanic before we moved to our house.  He got the clothes in the wash then left.

Got a call from my husband when he arrived at the mechanic’s.  The vehicle will probably have to be totaled due to the damage.  His step-father had done a heck of a lot more damage to himself than he let on to me.  My husband took him to the urgent care clinic to have him looked over and get his hand X-rayed.  Then he contacted his mother to let her know where her husband was!  My husband grounded his step-farther from driving for a month.  When his mom arrived, she grounded her husband too.  Turns our he had broken his hand.  That is JUST a little more than a bruise in my opinion.

My husband came back home, then the company we purchased my husband’s motorcycle from came to tow the our motorcycle away because the brakes were no longer working properly.  I have still not had the chance to ride it with him yet!  He is not a happy camper with his motorcycle in the shop!

The next day, my husband had a chiropractors appointment in the morning.  He got his back adjusted then went grocery shopping for the week ahead.  It was around 3 PM by the time he got back home!  Once home, he got a call from the motorcycle repair shop letting him know the problem with his motorcycle was from a problem that had a recall out to be fixed by the manufacturer.

They weren’t authorized to do the recall work required.  They towed the motorcycle at their cost to a company in the area that could take care of the repair.  It will be fixed there then returned to the place we had bought it from for other repairs that we had requested they complete while they had it.  Brake light modulators for safety, both of us agreed was well worth the added investment!

My father-in-law is now resting safely at home with his wife and cat.  Our motorcycle is in a different repair shop than the one we purchased it from.  No clue when we will have it back.  And I still have NOT gotten to ride the machine, yet!  No clue why I miss it.

Frustration – Resolved!

Miss the man I married back in December of 1995.  He was kind back then.  We had fun together driving around the back roads of the state of Missouri.  I want him back!

Had no idea how to reach him.  He is more interested in the PlayStation downstairs, than anything else.  No clue how we drifted apart.  Granted my body won’t let me go caving now.  Am stuck in this damned wheelchair.

Wanted to be able to get out of this house so bad, but there was no ramp.  Worked on getting a ramp built, but had to depend on the help of others to get it done.  Community ramp building program was who eventually built our ramp for us.  Now I can come and go as weather permits.  Unfortunately. I can not deal with hot temperatures.  Anything over 65 degrees and I get worn out.  Thankfully, this house has a good air conditioning unit in it.  It was one of the two requirements I had for the house we purchased back in August 2014.

My husband bought a   Honda Goldwing.Honda GoldwingIt is the first motorcycle I am willing to try riding!  Had bad experiences with motorcycles while growing up.  He let me sit on this one.  I actually felt safe on it!  Has what I refer to as “OH SHIT” bars on the passenger seat.  Was not dressed to ride that day, so he helped me get off the bike and got me back into my wheelchair.   Shorts are not safe to wear on a motorcycle.   Have to be at least wearing jeans.

Looking forward to my first ride!  If I enjoy my first ride using his old helmet, then we will invest in a helmet to fit me and chaps to wear over my jeans in case of an accident.  Down the road we will have to get a trailer for the motorcycle to carry my wheelchair with us on our travels.  Can’t wait to see where our travels lead us!

Baton’s May Be the Answer to the Gun Problem in the USA

Get baton training for self-defense over the internet if nothing else.  There are laws governing the sale and use of batons at this in some locations of our country.  You will need to check with local law enforcement to find out if there are any laws in your area you need to be concerned with.  Even the elderly can defend themselves with a baton.

Some police departments even offer baton self-defense training to the public.  With the way economy is today, everyone should learn how to defend themselves.  You may have to protect your own kids from would be attackers one day.  Think of saving a group of young children from an insane person with a gun, without having to fire a single shot.

Batons do not require expensive ammunition.  Supply the striking force yourself!  You may be the only adult with any self-defense training in the area, when someone attacks children.

Face it, police are spread pretty thin due to budget cuts around the country.  I’m not talking about going out and stirring up trouble, but you should be able to defend yourself and protect your family.  Learn how to stay calm when crisis presents itself to you and your family.

What would you do if someone threatened you or your family members?  Having self-defense training is the only way to prepare yourself before an emergency occurs.  You will be able to hopefully train your family members how to protect themselves.  Self preparedness is essential to protecting your family in emergencies!

Self-defense classes also provide a good workout, so if your goal is to help your family become physically fit you can kill two birds with one stone!  Signing your family up for self-defense classes can increase the self-esteem of bashful people who tend to hide away from the spot light,

My husband and I used to take tae kwondo lessons when we first started dating.  We both had a great time and it helped us get into better shape.  We stopped going because I was in the process of getting diagnosed with multiple sclerosis.   Miss both the workouts and my instructor.

Since we have moved several times to different places around the country, we have not been able to find a new instructor.  The benefits our instructor gave to the children he taught included self-confidence and goal setting.  Having a class with mixed age groups helps people learn how to get along with people of different ages.


Mondays are Loaded with Possibilities

Used to love Mondays, when I was still able to work as a network engineer.  You never knew what challenges would present themselves to your network.  Could be a vicious hacker attack or a natural disaster, you never knew ahead of time!

I miss all the exciting challenges that would come up unexpected.  A random snow storm or hurricane was not that unheard of.  You just had to meet the problem head on and conquer it.  People all around the world dealt with problems differently. Had to learn how to deal with other cultures so you could respect their individual beliefs.  As long as they were not physically hurting others, you just had to roll with the punches.

One of the best discussions on religion I ever had was with a group of coworkers during lunch.  We had many of the different religions represented during the conversation. Christians, Jews, Muslims, Buddhists and a few others I can’t remember what their beliefs were all participated in the discussion. We just agreed to listen to each other so we could learn more about our friend’s beliefs.  There was no judging, just helping each other understand where they were coming from.  If our managers would have found out what type of conversation we were having, we could have all been fired!  No one felt threatened or pressured in any way.  We were just educating each other about our personal beliefs.

In the world today, those type of lunch breaks can no longer happen.  The world has changed so much since 9/11/2001. There is no way we could have had that conversation today.  Our world has been damaged too much by the terrorists to ever allow those type of relaxed conversations to occur.  Our children will never know what exploring other faiths is like.  I remember attending a Bat Mitzvah for a young Jewish girl. Was under the mistaken impression that females had no place in the Jewish faith.

Mondays are always loaded with unending possibilities. Terrorists or not, it is still the start of a new week!

Setting Goals Will Help You Achieve Success Life

The most important thing is to set and then complete many goals.  May scare you at first to set a goal.  But as you successfully complete the goal, you will want to set more of them.  You may surprise the people in your life by turning out to be a dependable person.  Not only can you now set goals. but you can achieve them too!

Make sure that they are SMART goals.  I need to elaborate on that last statement.  A SMART goal is achievable by design.  The goal is actually designed to be achievable!

Specific.  The goal must be specific.   You have to state exactly what the goal is.  Wanting to exercise by going for walks, how often and for what distance will the walk be?  If your goal is about writing, how many pages or words will you be writing and what time will you spend writing?

Measurable.  The goal must be able to be measured.  In the case of a walking goal, how far or how many steps will you take during which length of time?   Considering a goal on writing?  How many pages or words during what length of time?

Action oriented. Walking meets the definition of an action. Writing, also meets the criteria.

Realistic. The goal has to be realistic. In the case of recovering from a disability, you may have to restrict your self to a few feet of walking at first, but you will be able to see the changes regular walking will do for you.  If your goal is about writing, you may only be able to produce a page a day. Don’t set your self up to fail.

Time defined. Back to the case of walking, how long do you plan on spending on each walk? Or in the case of writing, how many minutes or hours do you plan on spending at writing?

With the SMART goals in place, you will start out on a journey to complete many tasks.

If you are operating a business, the reputation you will get for being able to complete your goals will be priceless! Customers will find they can depend on you to complete projects that you have set. Which would you personally prefer to use a dependable business or a flash in the pan type of business?

Many businesses fail to be able to live up to the projects they set for themselves. They did not set SMART goals. Granted you will not be able to successfully complete every single objective, but if you make SMART goals failure will be less common.

Good luck on setting up your new projects, but if they are SMART goals luck is not necessary!

Top 7 Actions You Should Take To Protect Yourself

Top 7 Actions You Should Take To Help Protect Yourself

1. Have an escape plan for every room of your home, in case of emergency!

2. Keep working flashlights in main rooms of house.

3. Carry charged phone, so call for help can be placed.

4. Have safe contained water supply available.

5. Have supply of food that does not need to be cooked.

6. Obtain up to date first aid kits in the home.

7. Acquire supply of any prescription medications used by members of your household.


Am excited about tomorrow’s meeting with a contractor named Jim.  He will figure out if I qualify to have a ramp to my house built by the www.ramps.org group.  He will be going over the last 3 years tax paperwork, my social security disability benefit statement, and three months of my husbands pay stubs.  If everything checks out, we may be getting a wooden ramp to our back door installed free of charge!

Will be nice to be able to get in and out of the house safely.  The way we had been doing it really scared me.  There were no safety rails and I have a tendency to fall from the weirdest places at the worst possible moment.  Have been wanting to meet our neighbors since we moved in!  The kids in this area all seem friendly and well behaved.

Have been in a wheelchair since we moved into this state back in 2008.  Spent years in Hades at an apartment complex that was supposed to be handicap accessible.  It was a testament to how little people in the town we used to live knew about handicap people.  No ramps in or out of the building.  Door ways too small to fit the smallest adult wheelchair through.  Public transportation was driven by drivers that should have their licences taken away for not clearing obstacles in the road.  How hard is it to drive around existing poles and trees?  Only risked it twice.  Gave up on it as a lost cause.

We purchased a house back on Aug. 15 of 2014.  Moved in by the 20th.  Knew then there was no ramp in existence.  The only place we saw up for sale at the time was a mobile home, but our bank doesn’t offer loans to by modular homes.  So that is why I looked for the house that would be the easiest to modify by adding a ramp.  Found a three bedroom, 2 bathroom house with air conditioning already in it!  Tend to go into seizures if I get overheated, so that was an added benefit!

Tomorrow, I find out if and when I’ll get my freedom!  Looking forward to being able to plant a garden. My husband took care of the wasp nest I had seen between the two windows in our front room.  Anaphylaxis from a wasp sting is NO FUN!  I stop breathing. without an Epinephrine shot, I die.  Fortunately, the first time I was stung, my grandfather who has the same problem. was able to give me the shot.  So armed with my epi pens, I will be able to go out side to start a garden.  Tomatoes are the first thing I will plant.  Since both of us love them.  Next year if those worked, will add cucumbers, radishes, peppers, and various herbs.

Can’t wait to get started!