Tag Archives: Biogen

Prompt for today: “Fog”

The completely unclear people from the Daily Post division of Word Press chose the word “Fog” to spur our creations of various types of art for today.

My Foggy Brain

Happens to be mostly a result of an evil disease more commonly known as multiple sclerosis.  Generally causes it’s sufferers to experience varying types brain fog.  Mornings are when I can fight through it the best and generate some work either household chores or typing on one of our laptop computers.  By about 3 in the afternoon, my mind is done with getting any sense out of it.

My brain fog has absolutely nothing to do with my age or what I have put into my body (like alcohol or drugs).  Wish it did, because then I could control when and where the fog occurred!  I might actual enjoy a case of self inflicted brain fog that way.  Haven’t been drunk in years.

Drank so much while in my freshman year of college (mind you I was only 17 when I started that year) had to ask a room mate who was in the room when I changed clothes one day due to pictures that ended up on my camera!  That day forced me to realize I had a problem, so went dry by myself over a long 3 day weekend.  Going dry cold turkey was rough.  Glad I had the suite to myself, because spent way too much time in the bathroom!

Please Help Fight Terrible Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

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Prompt for the Day: “Fake”

The compulsive liars at the Daily Press division of Word Press chose the word “Fake” to enliven our creations for today.

Makes Me Think of Sham

Think about what you wash your hair with a shampoo.  Little kids are taught to refer to their fecal out put as poo or poop.  So what you use on your hair to clean it is by definition fake poo!

Politics these days are no more than media presentations of a candidate’s fake promises to the region they are trying to get elected for office to lead!  Are you actually going to follow the liar anywhere?  I wouldn’t.  Too many quicksand patches for them to coax us into like cattle at a slaughter house.

Remember the fake friends we all had when we were younger in school?  They were your friends as long as you had something to give them.  Most faded away into our past like bad memories that they really were!  You may still be in touch with the few select real friends you had back then.

Don’t even get me started on today’s retail driven society.  Seems like every new product is as bad as the last was, both for your health and finances!  A simple cup of coffee is deadly and way over priced.

Please Help Fight Malicious Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: “Closet”

The secrecy seeking people of the Daily Post group at Word Press chose the word “Closet” to light our creative fires for the day.

My Closets

Miss the old walk in closets we had at our house in Colorado.  Had a mirror on the door in which you could make sure you were suitably dressed for the day’s scheduled events.  The closets were HUGE!  Plenty of room for our clothing and other storage needs.  The master bedroom there was a big as the closets contained with in them.

The closets in our current house are a pretty flimsy affair.  My husband and I are forced to share a single tiny closet the has no doors!  It had curtains over the door way when we moved in.  The curtains were so annoying to get in the area with, had my husband remove the one on my side and put it up to cover the entrance to the upstairs bathroom door.  The actual door had to be removed so I could get in and out of the room using my wheelchair.  There is another smaller closet in the spare bedroom.  Neither of the two closets offer much above the hanging racks for storage.

Please Help Fight Evil Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: “Breath”

The people who apparently do not suffer from asthma at the Daily Post group of Word Press selected “Breath” for the daily prompt to make us take someone else’s breath away with our artistry.

Wish My Breaths Came Easier!

Having been diagnosed with asthma around my fifth grade year in grade school, my breathing tends to be erratic in nature.  The doctor back then prescribed me with a Primatine Mist inhaler.  He made no mention of the possible side effects.  Think I experienced each of them at least once!  My grandfather who suffered from emphysema was very familiar with the product and hated it.  I was just a small child with breathing problems, fortunately the local school gave me no trouble with keeping my medicine with me.

Was stuck keeping that evil drug at my side until I moved out of state to attend college.  In the new place, saw better medical physicians who were appalled at a young female using this antiquated drug!  Needless to say, they tried several different medicines before finding one that would let my breath come more easily.

The day after I graduated from college, I married a man that literally took my breath away.  He has been by my side now for over 20 wonderful years.  During that time my health has deteriorated steadily, since less than a year after our wedding I was diagnosed with multiple sclerosis.  That took the breath right out of both of us.  Moved away from that state to pursue my career as a network engineer.

That career would relocate us to my dream state of Colorado, eventually.  We tried buying a house there with breath taking views of the Rockies from my office window up stairs.  Went skiing with just the two of us and then with the company I worked for.  Had a blast playing on the mountains.  The air up there was thinner, making breathing tricky at times until my body adapted to the altitude of being a mile above sea level.

Please Help Fight Malicious Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: “Disaster”

The curious people at the Daily Post division of Word Press gave us the prompt for the day of “Disaster” to form our day’s artistic product around.

My Daily Disasters

Seems like each day is just one crisis after another.  Fortunately, have had no severe falls so far today.  But almost did a nose dive into the tub in the upstairs bathroom this morning while trying to transfer my body from my wheelchair to the toilet seat.  Scared myself to death!  My husband was in the process of waking up as I returned shaking to the bedroom to get dressed for the day.

Made it safely through getting dressed and into the front room.  Had to inspect the house to see if the vomiting noise I heard our cat make at 3:14 this morning was a mess.  Apparently, our feline is an extremely convincing faker!

So far no more disasters today, I am lucky!  A few days ago, a neighbour knocked on the front door to let me know there was a dead cat at the end of the front stairs to our house.  Since our cat is strictly an indoor animal, knew it wasn’t ours.

So I tried leaving the house using the back door which has my wheelchair ramp connected to  it.  Had no problems getting to the detached garage’s driveway.  Tried going out onto the road off the driveway and couldn’t get both wheels to connect to make me move either forward or back!  I was stuck half way out onto the road.  Cars just passed by without slowing (luckily did not hit me!).  The lady in the house across the street was out in her front yard with her dogs.  I yelled over asking for help.

The nice lady (not the one who had informed me of the dead animal) had to convince her animals they could not come out the gate with her.  She pushed my wheelchair back up onto our driveway.  Promised her that I would not try leaving the driveway without having somebody there to help me up on level ground.  The driveway to our second garage is anything but level!

Please Help Fight Terrible Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt from a few days ago: “Newspaper”

The prompt from the whimsical people at the Daily Post division of Word Press imagined he prompt from a few days ago of “Newspaper” to enlighten our creative pursuits of that day.

My Newspaper Experiences

Have always loved writing, so I joined our high school’s newspaper staff one year.  Not being a part of the “in” crowd, didn’t work out too well.  Was not interested in the school’s sports teams or where the next parties where being held.  So I sort of fell flat on that endeavour.

Ended up appearing on the front page of the local paper almost every week, it seemed though.  Either winning scholastic awards or my involvement with Girl Scouts, 4-H, or the church I was forced to attend.  At least my grandparents were getting their subscription’s money’s worth out of seeing one of their descendant’s name and or face on the paper each week.  I hated getting the publicity for just being what I considered just another kid.

Now days, I do not even waste my time looking at a newspaper.  Face it, by the time it is off the press it is old news!  Get my information on what’s happening in the world through the internet, now.  No more wasting trees that the local animals have been using for a rest room!

Please Help Fight Evil Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: “Suitcase”

The vagabonds from the Daily Post division of Word Press wanted us to focus our artistic talents on the word “Suitcase” for the day.

Music First

The prompt for today made me think of a John Denver classic”Leaving on a Jet Plane“.  Used to hate when I had to fly to a distant job site when I worked as a network engineer.  Flying all over the country without my husband and our cats.  Missed them extremely each time.

My Life Next

Got my first real suitcase when I was hired by an engineering company back in 1997.  Still have that case and garment bag today.  Made the mistake of lending the suitcase to my in-laws once.  Came back with the handle really messed up.  Had to take my sewing supplies and repair it.

Now, my hands are not steady enough to sew any more due to a disease called multiple sclerosis.  Will NOT be lending anyone my suitcase anymore!  Took that case with me through out the Midwest USA and we took it along when we moved to Colorado in 1998.  Lived in that glorious state until 2004.  When we left, the case came along packed full of clothing we would need until we settled into the house there.  We have moved several more times, eventually relocating to the house in which we currently live happily.  Plan on not moving until I am relocated to the local morgue for cremation!

Please Help Fight Malicious Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

 

Prompt for the Day: “Giggle”

The extroverted people at the Daily Post division of Word Press probably got a laugh or two out of choosing today’s prompt of “Giggle” to inspire our creations for the day.

Few things make me Giggle

I only get the giggles when I am extremely nervous.  The strangest things make me uncomfortable causing me to start an unstoppable bout of giggling.  Just my husband popping my back for me can cause uncontrollable outbursts of laughter coming from me. Annoys the heck out of him unfortunately, though.

There are many worse occasions of nervous giggling.  Most men do not enjoy being laughed at when they are undressing, just because you get a case of the undisciplined laughter.  I truly like his appearance, but a man that is well over a foot taller than you are can make you nervous occasionally.  He would never intentionally hurt me, he just kicks in his sleep like I do once in a while.

That is what happens when you marry a person who suffers from restless leg syndrome.  I just kick when I am having a nightmare in self-defence from the creature or person in the evil dream.

Please Help Fight Malicious Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: “Bedtime”

The sleepy people at the Daily Post group of Word Press could only dream of reaching “Bedtime” for today’s prompt to inspire or creations.

Now I am Sleepy

Thanks a lot you guys!  Have a full day still in front of me to go through before I get a chance for any more sleep.

Been a nerve racking day so far! Got a pre-op physical set up with the office of my primary care physician.  That was the easy part of the whole nightmare.  Once that was obtained for later this month had to delve into getting the dreaded M.R.I. set up like I promised my neurologist’s assistant I would get finished sometime before August of this year.  Now I just have to await the frightening call setting up the actual date and time the procedure will be done.

For normal people this test is nothing worse than being forced to hold absolutely still for a little over 2 hours while they get radiological data on your body, both with and without contrast that is injected in your veins. But for people with claustrophobia like me, it is a terror filled time strapped down on a piece of unforgiving metal that is then fed into a tiny cylinder where the test is preformed.  The horror!

Please Help Fight Dreadful Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: “Misplaced”

The forgetful people at the Daily Post division of Word Press apparently accidentally lost something so they selected the word “Misplaced” for today’s inspiration for our creations.

I Misplace Things Frequently

Would lose my head if it were not permanently attached atop my shoulders!  Keep my cell phone with me at all times, since it is my life line if I fall and can’t get back up (am permanently wheelchair bound due to multiple sclerosis).

Lose pencils and erasers periodically just to drive myself more crazy than I already am.  Have standard places where I keep things that I MUST have available.  If those items like my medicines are moved, I panic!  They claim that changing things up in a life is good for a person, but I do not respond well to change.  Makes me think I have forgotten or mislaid something.

Sometime during our move away from Colorado back in 2004, I misplaced the marble collection I have had since I was little, you know the glassies, the swirl ones, and the plainer ones.  Guess I can truly say “I lost my marbles!”  My mom even sent me a single marble with a poem attached that comments on those like us who have lost their marbles are not any stranger than the rest of the world.

Please Help Fight Malicious Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes