Tag Archives: Biogen

Prompt for the Day: “Chaos”

The people at the Daily Post group of Word Press who apparently know my life too well, selected the word “Chaos” to light the flames for today’s various creations of art.

Welcome to My Chaos!

I do not remember a time when my life was not in an utter state of confusion.  Started kindergarten at the wise old age of 4 years old with my best friend from church.  Together we got in a lot of real fun messes in the play ground.  We were inseparable until they closed the school after our first grade year.  We then were shipped off to the big city school of Marissa, IL.  Population of the town back then was a little over 2 thousand.  (Bus ride was about an hour each way!)  Our class was bigger now, went from 10 kids to around 35.  She was in the “popular: crowd.  I wasn’t.  I preferred being in a group of maybe 2 – 3 kids at a time.

Then we went off to the Junior / Senior High School building as we got older.  By then the school had absorbed a few more towns.  Our graduating class swelled to the lower 40’s in size for that big day.  She still resides in that old town.  I have moved many times with my husband.  He is the one constant factor in my life.

We have been through receiving a final diagnoses for the disease that has haunted my family for generations.  Less than a year after our wedding, it was apparent that something was seriously wrong with my body!  Eventually got the name of the illness it was multiple sclerosis!  Upon getting that information, all my female relatives on my mother’s side of the family finally had an answer to their health troubles!

Please Help Fight Terrible Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: “Stroll”

The laid back people at the Daily Post division of Word Press came up with today’s prompt of “Stroll” to inspire our daily works of art!

Wish I could take a Stroll!

Am now confined to taking a roll, not a stroll.  Being confined to a wheelchair for the rest of my life sucks, to put it politely!  Have to be concerned about the terrain I attempt to cross now.  No more tree climbing for me these days, unfortunately.

Used to enjoy going for a walk in the woods.  That behaviour could potentially cause me to end up with a flat tire.  Hate riding on the bare rims of the chair!  Prefer having the comfort of well inflated tires to ride on.  Riding on the rims will cause serious damage shortening the life of the chair.

Wheelchairs are definitely not a cheap expense these days.  Economic inflation has nothing to do with the problem.  Takes months to get a new chair fitted and delivered to your home now!  Getting home delivery is a nice addition thanks to my insurance’s package.  The delivery man generally helps teach you how to care for your new medical device, helping to prolong the life of the chair.

Please Help Fight Hideous Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: “Sacrifice”

The fearful people at the Daily Post division of Word Press chose “Sacrifice” as the word for our artistic work to be centered on.

Where to begin?

Since leaving Colorado, have literally sacrificed my career and sanity!  Am no longer able to find employment in my chosen career field.  Haven’t seen my sanity even lurking in the shadows for years!  Spent a few days locked up in the loony bin after contemplating suicide.  (Do not call a good friend to say your final good byes before your attempt!)

Heard someone pounding on the front door of our house.  Figured some idiot motorist was having car problems, so I answered the door.  Turned out to be an officer from the local police department coming to take me away to the insane asylum.  My friend’s husband had called them while she kept me on the phone.

My body finally gave away my ability to walk permanently shortly after coming home from the nut ward.  So now am a permanently disabled unemployed person who’s mental state is iffy on a good day!  Even my best friend, a cat we had adopted while living in the Chicago-metro area, passed away back in 2010.  At least I never ran my wheelchair tires over his tail!

Please Help Fight Terrible Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: “Hope”

The optimistic minded people from the Daily Post group of Word Press chose the word “Hope” for us to dream up our day’s works of art to display.

Not an Optimist Myself

So I don’t waste too much time on hoping for anything!  I prefer to WORK to achieve actual tangible results.  Have been working and paying in to social security since I was 12 years old.  Helped me a whole lot when I had to file for permanent medical disability a few years ago.  Granted my income as I got older was significantly higher than the tiny pittance I earned at such a young and inexperienced age of twelve.  Going out of state to attend college made a ginormous difference!  Hope did nothing to increase my net worth.

Planning and studying at a young age enabled me to win scholarships to attend college making all the diversity.  While at school, I landed a wonderful internship that became my first fully paid full time job in the career I had came to love.  Became a successful network engineer!  Did not hope to become that, I worked to secure my positions.

Please Help Fight Hideous Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: “Abandoned”

The prompt for the day from the cruel people at the Daily Post division of Word Press is “Abandoned“.

Too Many People / Things are Abandoned

Today’s society has everyone leaving perfectly good people and things by the wayside to fend for themselves.  Look at the number of homeless people in the U.S.A. today!  How many pets have been left wandering out on the streets looking for both food and attention?  Just because the family had to relocate, doesn’t mean their animals should be left behind.

Even things like perfectly usable furniture gets put in the garbage these days.  Granted most newer  home goods are not created to withstand the test of time, like they were in the past generations.  But they could be put to some use if you had a little imagination!

Even our returning veterans who suffer from one form or another of PTSD can be helped with counseling and/ or medications to help stabilize their feelings of outside threats.  They risked their lives defending our country for our safety here at home.  The least we can do is give them a secure place and help overcoming their illnesses!  They may never go back to being who they were before their service, but their experiences should not be wasted out on the streets.

Please Help Fight Evil Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: “Scars”

The masochistically minded people from the Daily Post group of Word Press wants to have us create today’s art works centred around our “Scars“.

My Many Physical Scars

Funniest ones are from when I was in 7th grade.  A boy in my confirmation class at the church I attended came to class after being infected with chicken pox.  Naturally, we all came down with it.  Because I was ignorant as to what a break out of the sickness actually looked like, thought it was just another acne out break.  During 7th period that day, our teacher warned us that one of our class mates was in the hospital due to having his throat swell shut due to a chicken pox out break.  As he described what the pox looked like me and three other class mates asked to visit the nurse, since we had experienced a similar out break.  By the end of the week, our entire class at school was out sick with the chicken pox!

Have scars on my right knee from riding bicycles with my cousin while my parents were out of town.  They actually had paved streets there!  My freshman year in high school another fall resulted in me finishing ripping the cartilage up in my knee.  Had to have arthroscopic surgery to repair it.  Still sport the disfigurement today.

Then I went off to another state of the country alone to college.  They had both paved streets AND curbs to manoeuvre around both walking and on bikes.  Drastically rearranged my face due to an abrupt  meeting with the side walk.

Resettled to MN in 2008.  Had a few more defects added to my body surgically.  First one was misplaced and sliced one of my nerves.  Took over 3 years of constant pain before the surgeon finally figured out I was not trying to just get pain killing drugs, he had actually made an actual error!  So I submitted to another crater being added to my body’s appearance.

Please Help Fight Evil Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: “Curve”

The pornographic minded people from the Daily Post group of Word Press want us to polish creations made around the word “Curve“.

My Body is Mostly Curve-less

Thankfully was not cursed with a big rack on top like most of my mother’s family was.  Get by going braless most of the time.  My husband might wish I had more, but there is absolutely nothing we can do to alter the situation without resorting to surgical implants.

Since my body does not react well to anything being surgically added to it like sub-pubic catheters or ports to my jugular vein to access my blood supply, any other additions are completely out of the question!

Roads that do not have curves in them are both boring and deadly!  Grew up living on a stretch of highway that was way too straight.  There were too many accidents from people falling asleep at the wheel due to the boring stretch.  One of my earliest memories was having my comforter from my bed used to help stop the bleeding of a motorist who had ran his vehicle into one of our field’s culverts.  Was a Bambi comforter given to me by my grandparents!  Mom was never able to completely remove the stains from it.

Please Help Fight Terrible Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes