Prompt for the Day: “Punishment”

The sadists at the Daily Post division of Word Press chose the word “Punishment” for us to create our various works of art about for the day.

What Forms of Discipline Do You Hate?

As a kid, spent my life in literal fear of my father who handed out the most painful punishments.  He had the knack of not leaving visible damage that wasn’t covered by our clothing.  So my teachers never knew of the abuse he inflicted on me and my younger brothers.  One of the first things I did upon leaving home to attend college was get self defence training!  He would never be able to hurt me again!

What forms of punishment did you endure as a child?

One of the worst punishments was in my high school years, when he forbade me to talk to my mother about my problems anymore.  She had to resort to asking my friends what was bothering me back then.  Thankfully, my friends all liked my mom!  Unfortunately, I had not told them about my father’s mandate about not speaking to her.  Face it, your high school years can be the most difficult time in a young person’s life to navigate through!

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Was an honest nerd who enjoyed teaching others when our teachers failed to clearly explain the subject matter to fellow students.  Would not give answers to my friends, just show them how to arrive at them on their own!  There was one time when a teacher was not grading one of my friend’s papers fairly, so I had her write the assigned essay and I signed my name to it and I wrote one and had her sign her name to it.  She received her first decently graded paper and I received an ‘A’ like normal.  When the teacher handed back our papers, I confessed our deceit.

Please Help Fight Hideous Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely.

 

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Prompt for the Day: “Smooth”

The slick people at the Daily Post division of Word Press want our daily works of art to be centered on the word “Smooth“.

Quotes First:

“Smooth move, Exlax”  Was said in at least two different movies.  My favourite movie using the quote was “Back to the Future“.  At least one other movie was quoted with the same line the “Explorers“.  Not sure I ever saw that one, though.

Tend not to Be Smooth Myself

Can fall over imaginary lines in my path.  Basically am an expert at falling.  Been doing it my whole life.  Not even going to start in on the number of injuries I have caused myself with my clumsiness!  Even took a Taekwondo class to try to improve my falling skills with the guy I was dating at the time.  He outranks me in the class, but the only reason for that is I am too protective of one of my knees that I had to have surgery on during high school. We eventually gave up sparing and got married the day after I graduated from college.

He still keeps me in line (or I make him toe the line, you choose) each day.  Have to have a railing on my side of the bed now so I don’t fall out, am that bad off!  At least I no longer go for walks in my sleep.  (Think that may be due to being confined in a wheelchair now, more than anything!)  Have managed to roll over my own toes with my wheelchair (hurt like the dickens), but what else did you expect?  Ended up losing the toenail over the injury I caused myself.  Who needs a toenail on their big toe anyway?

Please Help Fight Evil Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: “Scars”

The masochistically minded people from the Daily Post group of Word Press wants to have us create today’s art works centred around our “Scars“.

My Many Physical Scars

Funniest ones are from when I was in 7th grade.  A boy in my confirmation class at the church I attended came to class after being infected with chicken pox.  Naturally, we all came down with it.  Because I was ignorant as to what a break out of the sickness actually looked like, thought it was just another acne out break.  During 7th period that day, our teacher warned us that one of our class mates was in the hospital due to having his throat swell shut due to a chicken pox out break.  As he described what the pox looked like me and three other class mates asked to visit the nurse, since we had experienced a similar out break.  By the end of the week, our entire class at school was out sick with the chicken pox!

Have scars on my right knee from riding bicycles with my cousin while my parents were out of town.  They actually had paved streets there!  My freshman year in high school another fall resulted in me finishing ripping the cartilage up in my knee.  Had to have arthroscopic surgery to repair it.  Still sport the disfigurement today.

Then I went off to another state of the country alone to college.  They had both paved streets AND curbs to manoeuvre around both walking and on bikes.  Drastically rearranged my face due to an abrupt  meeting with the side walk.

Resettled to MN in 2008.  Had a few more defects added to my body surgically.  First one was misplaced and sliced one of my nerves.  Took over 3 years of constant pain before the surgeon finally figured out I was not trying to just get pain killing drugs, he had actually made an actual error!  So I submitted to another crater being added to my body’s appearance.

Please Help Fight Evil Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: “Fearless”

The brave people working at the Daily Post division of Word Press chose “Fearless” as the prompt for the day to cause us to create inspirational works of art.

Am a Chicken Now!

With all the problems I have survived in my life, I am no longer as brave as I was back when I was a network engineer in Colorado!  There I could face the CEO’s of major companies since I was able to fix their networking problems with the help of the team of people I was with.  I had the router knowledge they needed to move their data safely all over the world!

When my husband and I relocated to Wisconsin back in 2004, I basically ended up losing my mind.  Was living with excruciating pain in my legs from lack of my medicines that I used to get from my doctors back in CO.  Tried finding employment there, but no one wanted an engineer.  Tried working for a retail company that failed to follow the ADA laws.

Ended up trying to commit suicide.  With that incident, all my computer knowledge disappeared as well.  Can no longer face people now like I used to be able to do so easily.

Am no longer able to write legibly, so I type so I and others can read my works.  Started blogging using my laptop to keep my language skills from vanishing as well.

Please Help Fight Vile Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Prompt for the Day: “Nerve”

The people from the Daily Post group of Word Press must enjoy spying on other people’s lives since they chose the prompt for today as “Nerve” to inspire or creations for the day.

My Nerves are Messed Up

Both the physical nerves and the mental nerves.  Physically, my body is inflicted with a disease called multiple sclerosis.  Have had this disease basically since birth.  Went to the family doctor wth my first symptoms in grade school.  The idiot told my mom that I was making things up, there was no physical evidence to the sunburn feeling I was having on my stomach and legs.

Did not get a clearer picture of what was wrong with me until I left the state to attend college.  While there, went to a chiropractor for pains in my neck and back.  After visiting him for a year or two, he sent me to have an M.R.I. performed on my spine.  Got the results back and the doctor told me he could no longer be of any long term help since I either had spinal cancer or multiple sclerosis.  Wish it had been cancer, because I probably would have died by now!

On the mental nerve subject, I suffer from general anxiety now.  Being around unknown people makes me overly nervous.  Miss being in charge of huge networks like I used to be when I was able to work.  Made friends from all over the world by creating network connections for businesses.   But now that I am unemployed, I have lost my nerve.

Pease Help Fight Terrible Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

 

Prompt for the Day: “Misstep”

The people in charge of the dictionary at the Daily Post division of Word Press flipped the pages to land on the word for the day “Misstep” to inspire our creations for the day.

I Misstep Every Time Foot Goes Down

Tripping was a way of life when I was younger.  Fell down the single step into my bedroom that resulted in doing severe damage to my already messed up right knee.  Messed the knee up riding bikes with my cousins while my parents were away at a meeting out of town for a few days.  Pain would shoot through my knee but all I could do was let my aunt stop the bleeding that went on and on for what seemed like forever.  After that, my knee would lock in place and make audible creaking noises when I walked.  Was really eerie!  Sort of gross to tell you the truth!

Falling down the stair to my bedroom made more excruciating agony sear through the knee.  Asked my mom to take me to the doctor to have it looked at (I hated the doctor we went to back then).  My father decided he would look at it.  He twisted the knee to the point I actually felt something tearing in my knee.  Now the damage was even worse (even though I didn’t think that was possible)!  Could no longer put any weight on it.  So they got me a pair of crutches to use until I could visit the doctor.  The doctor sent me to an arthroscopic surgeon to see if he would be able to resolve the injury.

The surgeon pumped the joint with air so he could see inside my knee.  For the record, that was agonizing!  Then he sent me home to await his diagnoses.  My mom received the call telling her I had ripped the cartilage in my knee and it would have to be surgically repaired.  The surgery was scheduled over the long Thanksgiving weekend.  Had to be fully sedated because I am afraid of needles and doctors both.  Remember them putting me under, then woke up to the surgeon checking on my knee.  Asked if they were going to get the procedure started, he laughed and said it has been finished for a while now!  I replied, “It doesn’t feel all torn up like I thought it would”.  He told me I was still having the side effect of the sedation taking my pain away.  The next day, it still ached and I had to continue to use my crutches.

Please Help Fight Destructive Disease

The medicine my neurologist has prescribed for me for my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

 

 

 

Prompt for the Day: “Secret”

The ex-KGB operatives came up with the prompt for today of “Secret”  Then they gave us a life-or-death command-“Write a new post in response to today’s one-word prompt.”

Secret

Made me think of a song from when I was in junior high school by the Romantics.  Here is a youtube video of the group performing the song”I hear secrets that you keep while you are talking in your sleep“.

As a sleep talker, myself (talking was the mildest things I did while sleeping!) gave away too much of my life to others vocally.  Scared the crap out of others when I picked up my softball bat and went after them while sleeping!  There was the brick wall I tried putting my foot through one night.  The wallpaper over the wall didn’t stand a chance!  The brick wall was the only thing that stopped my unprovoked attack.

My mother had to hang a beach towel over the hole in the wall to hide the damage I had caused to my bedroom from public view.  Guess she didn’t want to answer too many questions about her only daughter’s attack on a defenceless wall!  Others who shared my bed on visits were warned that if I started kicking jump out of bed quickly for their own safety!

Please Help Fight this Evil Disease

The medicine my neurologist has prescribed for me for my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Post of the Day: “Pat on the Back”

Am very proud of my best friend (second cousin) Rachel who has raised several children, and is now a grandmother to her first grandchild.  She deserves a “Pat on the Back” for surviving her first disastrous marriage and then finding the courage to look for love again afterwards.

Rachel is Happily Married to Kevin

Kevin was diagnosed with the same disease I have been suffering from since grade school.  The annoying disease called multiple sclerosis took his life calling of EMT from him.  He is now unemployed, but she continues to stick by him throughout his MS attacks.  Working two separate jobs to support her family, she wonders why she is always tired.

She suffers from fibromyalgia silently.  Her body constantly revolts against her struggles as a nurse.  She helps others survive in nursing homes and other places a starting out nurse is employed.  Lifting elderly patients when they need help moving around is all in a day’s work for her.  Administering injections to vaccinate young children from horrible diseases like polio and tetanus is fun for her for some ungodly reason!  Both Kevin and I agree she must have a hidden cruel side if she likes causing little kids pain.  But we love her just the same!

Please Help Fight this Evil Disease

The medicine my neurologist has prescribed for me for my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

 

 

Prompt for the Day: “Karma Chameleon”

The ever curious people at the Daily Post division of Word Press came up with the prompt of “Karma Chameleon” to ignite our creative fires for the day.  Then they asked a simple question-“Reincarnation: do you believe in it?”

Prompt got me thinking of a song: by the Culture Club by the same name.  Here is the video.

Reincarnation-  Who knows?

Doubt I had a life before this nightmare!  Why would have I come back to live in hell again?  Am not that much of a masochistic personality, myself.  Constant pain is no stranger to me these days.  My back hurts due to childhood scoliosis, my right big toe hurts do to an old outbreak of athlete’s foot that I failed to get cleared up.

Will end up having to visit a podiatrist to try and get the nail of my big toe on my right foot removed.  Want the fungus completely eradicated from my body, once and for all!  When you get fungus on your feet, DO NOT TRY to fix the damp problem by using creams or lotions!  My mother had a similar problem.  She had to take medicines in pill form for weeks and have the nail removed as well.

Please Help Fight this Evil Disease

The medicine my neurologist has prescribed for me for my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. So I have started a Go Fund Me campaign. To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

Bloody Mess!

The big toe on my right foot was really itching bad as I started getting ready for bed.  Made the mistake of reaching down to scratch it.  A hangnail got caught in the process and ripped off.  Blood started gushing out of my toe!

I have a disease known as multiple sclerosis.  My neurologist has me on a medicine called Tysabri to help me keep a minimal level of coordination.  That was not what caused the blood gush, the Heparin they use to close of my port to my veins is a blood thinner.  Seems now when I get a sever injury (ripped hang nail) blood sprays everywhere.   The blood loss left me feeling extremely drained when it happened last night, so I just made sure my foot was elevated as I slept.

Had to clean up the blood trail on the bedroom door and the floor both after getting up this morning. Toe is still throbbing, but at least when I took my shower this morning there was absolutely no blood loss!  Good thing is I am not grossed out by the sight of blood or it would have been even worse of a disaster.

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Please help fight my disease

The medicine my neurologist has me on for my multiple sclerosis is called Tysabri.  Trying to find the actual cost on the internet is impossible.  I remember when I first started on it , the amount the facility tried charging me was well over $2500.  There was no way my husband and I could afford that every 28 days!  Biogen (manufacturing drug company) has been helping us with some of the cost of the drug, but will not continue helping indefinitely.  So I have started a Go Fund Me campaign.  To contribute to the fund, click on the following link: https://www.gofundme.com/zfabhdes

All help will be greatly appreciated.   Thank you for your generosity!

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