Category Archives: multiple sclerosis

Shiver is the Prompt for Today

The people at the Daily Post group of Word Press must have either been in a really cold room or frightened when they chose “Shiver” for us to create our various works of art on for today.

Love Feeling Cold

Unfortunately, rarely feel cold enough to cause involuntary body trembling.  That is why we relocated up to the northern part of the continental United States of America the country where we were both born and raised.

Has been suggested that I try moving to:

  1. Alaska
  2. Finland
  3. Siberia
  4. Iceland
  5. Antarctica

You get the idea.  None of those places has the medical facilities I require to treat my multiple sclerosis.  Nor do they necessarily have a suitable place of employment for my husband!  Quiver in horror at the idea of forcing our cat to suffer through the idea of another move.

What makes you shiver?

To get Shivers of fear:

I recommend reading one of author Stephen King‘s novels or watching one of the film adaptations of one of his many books.

If you are a fan of the older generation books and movies, maybe a good Alfred Hitchcock selection would satisfy you best!

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Please Help Fight Hideous Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. If you would like to contribute to my fight against this mind stealing disease, please contribute by visiting  my personal website at http://saintpblogging.com/wp/ and seeing the copies of my writings located there!

Chronic Disease and Disability

Does the one lead to the other?  Not necessarily.  For the record, I have a chronic disease called Multiple Sclerosis.  Which has led me to be permanently wheelchair bound.  People with the disease I am cursed with, may or may not end up in a wheelchair.  I know some who are still able to move around walking freely who have the same illness!

Chronic Disease

A chronic disease is one lasting 3 months or more, by definition of the U.S. National Center for Health Statistics.  They cannot be prevented by vaccines or cured by medication, nor do they just disappear by themselves.  Some you are just born with, unfortunately!

Disabilities

Some children are born with a disability.  The child did not cause the problem.  Should have been identified as a disabled person long before entering the school systems.

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Later people who become disabled are subject to having to be able to prove that they are disabled.  Which is a whole other nightmare of documentation to prove or dis-prove the case for the disabled person.  Have to possess an organized system of keeping track of doctors and their findings to successfully qualify for U.S. disability income.  What sucks even more is  the administrators make you feel like you are utterly worthless during the whole filling procedure.  Went to one examiner while living in Wisconsin that had a full flight of stairs for me to climb up to his front door!  Being in a wheelchair, if my husband hadn’t came with me, I would not have made it through his front door for my scheduled appointment!  Ended up getting rejected for my application in that state.

Relocated back to southern Illinois and got assistance from a company called Allsup who took over my application for me and got me approved!  Took 3 years from my first application in WI to the filling with Allsup in total before receiving first Social Security Disability check.

Having worked all my life and paying all required taxes the check turned out to be a great thing at first, but then looking back to the life style I used to be able to afford while I was able to work.  If my husband didn’t have a decent job we would be out on the streets today!

Please Help Fight Evil Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. If you would like to contribute to my fight against this mind stealing disease, please contribute by visiting  my personal website at http://saintpblogging.com/wp/ and seeing the copies of my writings located there!

 

Youth is the Prompt for Today

The elderly people at the Daily Post division of Word Press would like us to create works of art to symbolize what the word “Youth” means to you.

Learning by Making Mistakes

Made tons of errors in my younger days.  Still make mistakes even today, but I never make the ones twice!  Guess that is what they mean by the wisdom of the older generations.  Yeah, they made mistakes but hopefully learned from their follies!

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What really tends to be annoying is all the fun I had making those mistakes back in my younger days.  Remember working all lot on the farm, but in my few hours off had a blast with my friends from town!  Would drag them with me to help out in chores occasionally, but they rarely could hold up against my work load for long.  Didn’t get my actual driver’s licence until I was over 16 years old, but drove on public roads after the age of 14.  Drove on farm property starting at the wise old age of 12 (was so short had to use blocks on the brake and gas pedals)!

What stupid things did you engage in while growing up?

There was the One Single Time

At the end of my Junior year of High school, when I drank a part of a can of beer at a senior’s graduation party.  Tasted nasty!  But unfortunately did not keep me from getting hooked on drinking harder liquors when I entered college.

Please Help Fight Hideous Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. If you would like to contribute to my fight against this mind stealing disease, please contribute by visiting  my personal website at http://saintpblogging.com/wp/ and seeing the copies of my writings located there!

Carry is the Prompt for Today

The weaklings at the Daily Post division of Word Press want us to think of creating works of art representing the word “Carry“/

Music First

Carry On My Wayward Son by the music group Kansas.

Try to Lug Your Canoe Across Land

That is how the Native American Indians used to carry their possessions from place to place.  Tribes relocated following food sources back in the old days.  My Great Grandmother passed away long before I was born.  She may have had to deal with these life experiences in her time.  Unfortunately, I truly doubt she did because she was confined on a federal reservation for her “kind”.  Talk about discrimination!

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Never got to engage in a conversation with her

Wish I had been able to meet her!  Grandpa says I think just like she did.  We could have carried on for hours about the disrespect young people show their elders today!  Do you have any ancestors you wish you could have met?

Live my life carrying guilt about the problems I have caused my family due to my crappy health problems.  On the positive side, at least I no longer have to transport heavy bales of hay!

 

Please Help Fight Evil Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. If you would like to contribute to my fight against this mind stealing disease, please contribute by visit my personal website at http://saintpblogging.com/wp/ and seeing the copies of my writings located there!

Confused Is Prompt For Day

The perplexed people at the Daily Post group of Word Press actually managed to make a clear choice for the prompt of the day of the word “Confused” for our art works to be based on.

Am Always Bewildered Lately

Have absolutely no idea how I get myself into these muddled messes.  Went with bright and clear shining eyes into asking the man I ended up marrying to marry me.  He turned around and dashed my dreams of happiness with him against the cave walls in the nearest park.  Flat out told me NO!  He wasn’t ready, yet.

Did your first marriage proposal go as you planned?

We had already picked out our wedding rings.  Talk about confusion.  Either he liked me or not, he was the man I wanted to live the rest of my life with!  I was attending college at the time, we had been sharing an apartment together for months to try to reduce costs.  Was sharing a bed with a guy who had told me he was not interested in marrying me.  A few days more ticked by, with me studying for a physics exam.  The actual day of the test, he handed me my engagement ring asking me to marry him!  Needless to say I failed the examination.  Ended up having to retake the class in the next semester.

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We have been married for well over 20 years now.  Have lived in different states of the United States of America.  Have had our phenomenal periods and our devastating atrocious nightmares.  Who doesn’t go through this type of life?

Please Help Fight Vicious Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. If you would like to contribute to my fight against this mind stealing disease, please contribute by visit my personal website at http://saintpblogging.com/wp/ and seeing the copies of my writings located there!

Complicated is the Prompt for the Day

The apparent members of the Brain Trust located at the Daily Post division of Word Press want us to create works of art based on the concept of “Complicated” for today.

Life Is Complicated Today

Just take a look at the current political situation with the United States of America’s up coming elections.  The one running in the Democratic Party is a bold faced liar, that I wouldn’t trust a single clipped penny!  The gentleman running in the Republican Group talks off the cuff, ignoring what his speech writers have prepared for him to say.  I like the fact he speaks how he feels, but offending foreign countries may not be the smart way to proceed.

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Am extremely glad we have no children by choice.  Would not want them to be exposed to the school systems that are in operation for our country’s future generations!  How much longer will the American version of the English language be what is spoken here?  Do you still believe American kids should be taught English?

Who knows where the the future will lead us?  Maybe years down the road, human life will be wiped from the Earth by our own stupidity!  Too many bombs and wars wiping the planet free of all living creatures.  Could happen if we don’t change our ways.

Please Help Fight Horrendous Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. If you would like to contribute to my fight against this mind stealing disease, please contribute by visit my personal website at http://saintpblogging.com/wp/ and seeing the copies of my writings located there!

Reach is the Prompt for the Day

The people who must be blessed with height chose the word “Reach” for today’s prompt for us to create various works of art based on.

Everything is Out of My Physical Reach

Comes from being born short.  Managed to obtain my dream of being a successful network engineer, but had to give that position up due to not being able to chase wiring anymore, because a disease confined me to a wheelchair.

Miss telling data both where to go and how to get there!  Do Not Piss Off the engineer in charge of your network, or your traffic might be routed the slowest way posshttp://saintpblogging.com/wp/reach-is-the-prompt-for-the-day/ible.  Yeah the traffic will still arrive, just a few seconds later!  If they are really ticked off, it might end up in the “bit bucket” other wise known as file 13 or trash.

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Dreamed of being an astronaut while I was little

Didn’t find out there was a height requirement until I left for college.  There was absolutely no way I could ever reach that goal.  Needed to be several inches taller.  So that was completely out of my reach!  Changed my major to computer science and learned all about programming (which is really boring) and working with network traffic.  Preferred that side of the science!

What was your dream when you were little?

 

Please Help Fight Evil Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. If you would like to contribute to my fight against this mind stealing disease, please contribute by visit my personal website at http://saintpblogging.com/wp/ and seeing the copies of my writings located there!