Category Archives: family

Prompt for the Day: “Crisis”

The humorous people at the Daily Post group of Word Press wants us to create various works of art focusing on a single word “Crisis“.

Live in Chronic State of Crisis

Each minute seems to be a bigger emergency than the last minute!  Wears on you after a time (like a millisecond).  Holding your sanity in that form of alertness can snap even a Saint’s patience after an hour or so.  Nerves get frayed and tempers flare.

Imagine what my spouse has to live with if I am always in a crisis state each and every day!  Poor guy must be at his wit’s end by the time he gets me to go to bed each night.

If you have any calming words of wisdom for me, simply send them using the form below:

All words will be read by myself.  Thank you for your kind words of encouragement!

Living in disaster state all the time causes extreme frustration and debility.  Do you live in this sort of state, too?

Please Help Fight Hideous Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. If you would like to contribute to my fight against this mind stealing disease, please contribute by visit my personal website at http://saintpblogging.com/wp/ and see the copy of this article there!

Prompt for the Day: “Elusive”

The word smiths at the Daily Post division of Word Press chose the hard to define word of “Elusive” for us to base our works of art on today.

Hides From My Mental Grasp

Seems as slippery as a slimy escaping snake, the very idea of elusiveness.  Catch a glimpse of the idea for a second or two, and then it vanishes like smoke in the wind.  Face it, my mental state itself is elusive!

If you would like to give me advice on how to better control my sate of mind, all you have to do is fill out the form below:

All replies will be read strictly by myself alone!

Have seen proof that I actually have a brain located above my two shoulders via M.R.I. scan that is preformed every single year.  Apparently, the neurologist must be in as much doubt as I am on this fact!

Have you ever experienced the feeling that you are loosing your mind?

Face it, my sanity is continuously in question!  If someone finds it on top of a mountain somewhere, let it remain peacefully up there.  Every thing deserves a respite now and then.

Please Help Fight Horrible Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. If you would like to contribute to my fight against this mind stealing disease, please contribute by visit my personal website at http://saintpblogging.com/wp/ and seeing the copy of this article there!

 

 

Prompt for the Day: “Sanctuary”

The timid people at the Daily Post division of Word Press chose to have us create works of art based on the word “Sanctuary“.

My Refuge as a Child

Was climbing up an old apple tree in our front yard.  Surrounded by the leaves (in season) I was hidden from vision by people who did not know of my tendencies to climb to safety!  Up in that tree I could read (if I had brought a book with me) or talk to God undisturbed.  Felt more close to him there than I ever did in a stuffy church!

Got to enjoy nature while I was up there, too!  Fresh breezes blowing in over the fields surrounding the yard with the smell of growing crops like corn or soy beans.  If the farm happened to be hauling manure that day, smell would unfortunately drift my way way as well.

If you would like to contact me, simply fill out the form below:

I will read each single comment personally!

Where did you retreat to when you where little?

My other place to escape was visiting my mother’s parents.  Grandpa was the only one who truly believed in my dreams.  He swore I could accomplish anything if I set my mind to it!  (Only problem is my dream had a height requirement.  Am too short to ever successfully become an astronaut as I had hoped to become!)

Please Help Fight Hideous Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. If you would like to contribute to my fight against this mind stealing disease, please contribute by visit my personal website at http://saintpblogging.com/wp/ and seeing the copy of this article there!

Prompt for the Day: “Clock”

The time driven people at the Daily Post division of Word Press think they can force us to live by our clocks like they are forced to do by selecting the actual word “Clock” for today’s prompt for us to create our works of art around.

We Do Not Have Clock in House!

I know it is a shocking thing, but these days everyone has a cellphone!  Most cellphones have an alarm function on them and keep pretty accurate time.  Why waste money on another clock?  Even a stupid cell phone like I use, has the ability to set three separate alarms.  Personally, I prefer my stupid phone to the smart phone like my husband has.

It makes and receives calls quite well, what more do I need?  Have enough problems making sure I take all my medicines at their appointed time each day to worry about looking at clocks constantly!

If you would like to contact me, all you have to do is fill out the form below:

All replies will be read by me, personally!

How many clocks do you have running in your home?

These days being unemployed, am not as focused on clocks other than my cell phone that reminds me to take my medicines or to meet the Metro Mobility transportation providers who take me to and from my scheduled doctor’s appointments.  With out the excellent service Metro Mobility provides for the disabled people of the community, have no idea how I would continue to survive!

Please Help Fight Hideous Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely. If you would like to contribute to my fight against this mind stealing disease, please contribute by visit my personal website at http://saintpblogging.com/wp/ and seeing the copy of this article there!

Prompt for the Day: “Punishment”

The sadists at the Daily Post division of Word Press chose the word “Punishment” for us to create our various works of art about for the day.

What Forms of Discipline Do You Hate?

As a kid, spent my life in literal fear of my father who handed out the most painful punishments.  He had the knack of not leaving visible damage that wasn’t covered by our clothing.  So my teachers never knew of the abuse he inflicted on me and my younger brothers.  One of the first things I did upon leaving home to attend college was get self defence training!  He would never be able to hurt me again!

What forms of punishment did you endure as a child?

One of the worst punishments was in my high school years, when he forbade me to talk to my mother about my problems anymore.  She had to resort to asking my friends what was bothering me back then.  Thankfully, my friends all liked my mom!  Unfortunately, I had not told them about my father’s mandate about not speaking to her.  Face it, your high school years can be the most difficult time in a young person’s life to navigate through!

All comments will be read by me, personally!

Was an honest nerd who enjoyed teaching others when our teachers failed to clearly explain the subject matter to fellow students.  Would not give answers to my friends, just show them how to arrive at them on their own!  There was one time when a teacher was not grading one of my friend’s papers fairly, so I had her write the assigned essay and I signed my name to it and I wrote one and had her sign her name to it.  She received her first decently graded paper and I received an ‘A’ like normal.  When the teacher handed back our papers, I confessed our deceit.

Please Help Fight Hideous Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely.

 

Prompt for Today: “Carefree”

The blissful people at the Daily Post group of Word Press want to observe our art works based on the word “Carefree“.

Considering My Health Problems

I am definitely not ever carefree!  Along with the scoliosis and asthma I was diagnosed with as a child, add the hideous disease called multiple sclerosis and the sub pubic catheter I had surgically inserted in my body before starting my first dose of the disease modifying medicine in 2010 (has caused way too many urinary tract infections to count) tend to be constantly sick!

Just out of curiosity, how often do you end up coming down sick?

If you would like to offer any helpful advice on the subject of avoiding illness, simply fill out the form below:

All advice will be read by me personally.  Thank you for all your help in this continuously on going problem!

I always follow my doctor’s suggestions to the letter and finish all prescriptions completely.   Flush my nose out with saline as often as I can.  Have a deviated septum, so neti pots do not work for me, unfortunately.  There is no better way to invite illness to reside in your body, than not to finish medicines prescribed by your doctors!  Never share your medications with other people even within your family.  What works for you may make another person deathly ill!

Please Help Fight Truly Evil Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely.

 

Prompt for Yesterday: “Depth”

The shallow people at the Daily Post division of Word Press chose the word “Depth” for us to base our works of art on for the day.

Music First!

Made me think of the great old song by Genesis “In Too Deep

Most People Today Are Shallow

Most people today get married for all the wrong reasons.  Divorce rates are through the roof!  Don’t most wedding vows include “until death do us part”?  That is what me and my husband vowed each other on our wedding day over 20 years ago.  Yeah, he has tried to divorce me a few times, but then realized he couldn’t survive with out me!

Thankfully we do not have any children to put through our stressful life periods.  We just drive each other nuts on a daily basis!  Was insane before we got married, hasn’t gotten any better.

If you would like to contact me, all you have to do is simply fill out the form below:

Looking forward to your helpful advice!

The lack of depth in lives today is a saddening thing.  Young people today are too attached to their electronic devices to form any true human relationships.  Kids don’t run around and play outside like we used to, when we were little.  No in-taking of fresh air with their friends as they play in a local creek or with their pets out doors.  Walking the dog used to be a bonding period between the animal and the human.

Am looking forward to the answers to this poll

My husband stands with me when we each have health problems.  Admittedly I present more problems with my terrible health than he does, but we go through all of it together!

Please Help Fight Hideous Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely.

 

Prompt for the Day: “Feast”

The apparently starving people at the Daily Post group of Word Press would like us to make them salivate by creating works of art based on the word “Feast“.

Thanksgiving Only Feast Anticipate

Even them, I only eat moderately.  Gaining weight is not something my body can handle.  Have to be able to move myself through out our home.  Hoisting my slight frame from my wheelchair to other fixtures here takes both concentration and my limited supply of energy to complete!

Pumpkin Pie is the only variety of pie I will eat, since the filling tends to be a healthy one that is low in the sugary fattening gunk.  Not fond of putting whipped cream on top, either.  However my husband introduced me to the concept of topping the pie with a scoop of ice cream!  Who can say no to ice cream?  Not even a lactose intolerant person like me.  Simply have to take 2 dairy digestive pills with my first bite.

If you would like to contact me personally, all you need to do is fill out the form below:

I will read all messages myself!

When I was little, enjoyed going to my grandparents for meals on holidays.  Grandma would have the table piled overflowing with delicious food!  Great salads, vegetable dishes, and savoury meats.  The desert selections kept all the relatives eating for days with all the left overs she made for us grand kids!

Now that grandma has passed away, my mom is the one in charge of making the family holiday meals.  She used to help grandma by bringing along certain dishes she specialized in making, but no one helps mom these days.  The Thanksgiving meal is missing not only people that have passed on, but the family coming together helping create the feast!

Please Help Fight Evil Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely.

 

Prompt for the Day: “Frail”

The strong people at the Daily Post division of Word Press chose the word “Frail” for us weaklings to base our daily works of art upon.

Admit My Frailty

Am vulnerable due to my body’s weaknesses caused by a disease known as multiple sclerosis, or MS for short.  Add the scoliosis and asthma that my system has been dealing with since grade school, and I am an out right mess!

The MS causes me to be both clumsy and uncoordinated all at the same time.  If nothing else I am good for a hearty laugh at the insane situations I end up getting myself into!  Who else can run over their own toes in a wheelchair causing a blood bath streaming from one of my feet?

If you would like to contact me, simply fill out the form below:

All comments will be read by me personally!

That right foot has been a pain for as long as I can remember!  Had to cut a plantar wart out of it by myself in grade school.  My grandpa warned me it would have to be cut out by a doctor.  I hated the doctor I was forced to see as a child, so I just took my pocket knife, sterilized it with alcohol, and then proceeded to cut into my own foot!  Thankfully, I did it over in our milking parlor at the farm which has hoses to wash messes down the drain.  Was glad I could just hose all the blood down the drain.

Please Help Fight Hideous Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely.

 

Prompt for the Day: “Drive”

The road rage minded people at the Daily Post division of Word Press chose the word “Drive” for us to craft our works of art around.

Don’t Drive Any More

Started driving on our farm’s private property when I was only 12 and could barely reach the pedals for both the gas and brakes.  Was driving on public roads by the time I turned 14 (local state trooper knew all about it!).  His view on my driving was I probably was the only sober driver on the roads back then in southern Illinois!  Was not wearing glasses at the time.

The summer before I left the state to attend college received my first decent eye exam discovering the fact I needed to start wearing glasses to help me in my studies.  Freshman were not allowed to have cars on campus, so I got a mountain bike to ride across campus and to the grocery store.  My first three day weekend there, I wreaked the bike since I was not used to the concept of changing from street level to side walk height.  Did major damage to my two front teeth!  Kinda broke my lower jaw too.  Years down the road would uncover that I had also caused myself to have a deviated septum.

If you would like to contact me, all you have to do is fill out the form below:

All responses will be read by me personally!

Once I entered my sophomore year I was given my parents old car.  This way I could actually start looking for a job!  Had to learn how to fill the gas at a gas station, since we had private gas tanks on the farm at home.  At least gas prices back then were not as high as they are today!  Only $0.93 a gallon.  I miss those days.

After I graduated ended up finding out that I had a disease called multiple sclerosis.  This explained many of the coordination problems I had experienced in my life!  My husband and I would travel all over the country due to our various employers.

Drove shakily through our short stint (18 months) in the Chicago metro area.  People there are nuts!  On the toll ways there the posted speed limit was 75 MPH.  Traffic normally drove at over 110+ on a slow day!  Was driving a different car due to the transmission failing before we left for the area.  Right before we left the state my engine started smoking.

Pulled over at in a parking lot and opened the hood release.  Flames shot out at me!  Would not ever be driving that car again!  My husband came to rescue me in his truck.  He took me to our apartment, then caught a ride to where I had left the car.  He babied the car all the way back.   He agreed we had to get a different vehicle before we left for Colorado in a few days.  He came upon a used Jeep Grand Cherokee for me to drive.

Went with him to get the paperwork signed on my first big vehicle.  Ended up loving that SUV!  He got the SUV gassed up for my last week at work there.  Could not figure out why the vehicle kept reading “E” as I drove to work.  So I called him to ask if he was sure he had gotten gas in it!  “E” was the direction I was driving!  Paid attention to what the directions read on the way back home.  Turns out it was very accurate.  Was looking forward to when we headed out west in a few days!

It was in Colorado, that I first met a decent neurologist.  He got me started on a disease modifying medicine that would help my body adapt to living with MS.  Lived in that state for 7 glorious years.  Driving there was easier for me, since I no longer got confused by directions! Had nothing to do with the SUV.  Look up and the mountains where always to the west!  Loved driving off the beaten trail while we lived there.  Had excellent vision care there as well.

We left CO begrudgingly on my part to follow his dream of owning a bar.  Two former alcoholics really should not pursue that sort of dream.  Only lasted around 8 months there.  Had absolutely no access to my medicines.  My MS was driving me nuts.

Retreated back to where I had grown up.  Not a good situation.  Really had trouble driving due to my vision problems from MS.  My husband found work that got us back on our feet financially.  Started having a company called Allsup who specialized in helping people get their disability claims filed help me with my case.  They eventually succeeded in getting me full coverage since I had been paying social security taxes since I was 12 years old.

We relocated back to where we met and I had went to college.  He was able to transfer within the company he was working so he had a job there waiting for him.  My disability checks started coming in monthly, which helped a whole lot!  Still was unable to drive due to MS problems.  We lasted only around a year before he got a position in a different state entirely.  In 2008 we packed up and used a U Haul truck to transport all our stuff to an apartment complex that was supposed to be handicap accessible (it WASN’T).

My neurologist in this state informed me on April Fool’s Day in 2011 that I could no longer drive.  I busted out laughing and told him I hadn’t driven since before moving into this state.  Explained I didn’t want to accidentally injure or kill someone due to my driving!

Started wearing bifocals to help me see better.  Unfortunately, they tend to be expensive.  My vision was changing, getting worse by the month it seemed like, but could only get new glasses once a year.

Spent about 7 years living in HELL until we managed to find a home that could be converted for us so my wheelchair could easily come and go in it.  We signed on the house one Friday in August, and moved in 5 days later!  I hadn’t really ever unpacked since leaving CO.

Will never drive again, but the local transportation for the disabled allows me to go where ever I need to!  At least I will have no more speeding tickets or road rage problems like I used to get in trouble with the law over!

Please Help Fight Evil Disease

The medicine my neurologist prescribed for me to treat my multiple sclerosis is called Tysabri. Trying to find the actual cost on the internet is basically nearly impossible. I remember when I first started on the drug the amount the facility tried charging me was well over $2500. There was no way my husband and I could afford that then or every 28 days! Biogen (the company that manufactures the drug) has been helping us with some of the cost of the drug, but will not continue helping indefinitely.